Lupus Support Group
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I am recently dx's with Lupus, RA, Mixed Connective Tissue Ds, Sjogrens, and the list of all the other autoimmune dx continues.
My question is this: I have recently started having seizures, some quite bad. Should have gone to the hospital, but I live in an area where you could sit in emergency for hours, and finally receive little to no help. So I stay home and battle it out. So one of my doctors started me on Predisone 20 mg. per day and Plaquenil 200mg 2 times a day. I stayed on both for about 5 weeks then he cut the Predisone to 10mg, and the pain came back quickly, so three days later put me back on the original dose of Predisone 20mg, with the same Plaquenil 200mg 2xday. Three days later my first bad seizure. Then for the following days, sessions of severe to mild tremors, with head whipping, grunting, followed by many more seizures. My Neuro had a EEG done, and I just got the results that it's normal. Now I'm waiting for the brain MRI report. Past report 9 months ago found 15 deep lesions that the Radiologist suggested may be MS. Drs. don't agree with that.
In the meantime, even through my doctor said he doesn't think the meds are causing the seizures, but the Mixed Connective Tissue Dx, I have cut my dose of Predisone myself down to 10mg, and today being the third day. And no seizures.
Has anyone else had seizures with Predison and Plaquenil?
Any help would be accepted greatfully. I wish you all a wonderful, painfree day!
My question is this: I have recently started having seizures, some quite bad. Should have gone to the hospital, but I live in an area where you could sit in emergency for hours, and finally receive little to no help. So I stay home and battle it out. So one of my doctors started me on Predisone 20 mg. per day and Plaquenil 200mg 2 times a day. I stayed on both for about 5 weeks then he cut the Predisone to 10mg, and the pain came back quickly, so three days later put me back on the original dose of Predisone 20mg, with the same Plaquenil 200mg 2xday. Three days later my first bad seizure. Then for the following days, sessions of severe to mild tremors, with head whipping, grunting, followed by many more seizures. My Neuro had a EEG done, and I just got the results that it's normal. Now I'm waiting for the brain MRI report. Past report 9 months ago found 15 deep lesions that the Radiologist suggested may be MS. Drs. don't agree with that.
In the meantime, even through my doctor said he doesn't think the meds are causing the seizures, but the Mixed Connective Tissue Dx, I have cut my dose of Predisone myself down to 10mg, and today being the third day. And no seizures.
Has anyone else had seizures with Predison and Plaquenil?
Any help would be accepted greatfully. I wish you all a wonderful, painfree day!
So an update: STILL NO SEIZURES since I cut my Predisone down to 10mg per day. But then of course most of the pain is back. Kinda sucks to walk on the "Sunny Side of the Street" then boom, back to the pain. So yesterday I upped my Predisone dose to 15mg per day. I'm doing this on my own, trying to find the right balance to not cause more seizures, but enough to control the pain again. PLEASE wish me luck, as of course I wish you all.
The MRI came back, and the nurse called to say the Doctor says it's the same as in December. But I need to see the Radiologists report, because the MRI in Dec. the Neuro told the results were "you have a few tiny white spots". I didn't worry about it, till I went to a Rheumy and when he read the copy of the Radiologist report, he said "Oh, you have MS", it says it right here in the MRI Radiologists report. I got a copy of it and it does say "15 lesions differential to MS, and must follow up with MRI's every 6 Months". Well, as you can imagine that was a shocker, brought me to tears as it was just thrown at me. So I confront my Neuro, and he says he doesn't think it's MS, and disregard the Radiologist's, cause they don't know what they are talking about. Then I got with a Autoimmune Specialist (that is reknowned in his field) and he agrees that it's probably not MS, but they both said "we will back burner this MS, and then have to do a spinal tap to confirm". Hummmm, well, I don't want MS of course, just want to know the real truth. Even if that means that I got to add MS to my long list of DX's, it's not going to change anything, except to know what I'm dealing with, and then let's treat it!....Yikes, Doctors...LOL