Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Hey all!! I'm new to this group and just wanted to say hello!!! I'm a 28 yr old female who was just recently dx with SLE in May. I'm still a little confused about this disease and am hoping to get a better understanding of it. I'm excited to make new friends and to learn and discuss my issues with lupus!!!
Tishka
HUgs Nancy
I found Dr. Wallace's book "Manging Lupus for Patients and Families" very helpful. In addition, to joining the Lupus Foundation.
Hugssssssssssssssssssss to you.
peace and love ... Kyle Anne
If you have seven or more of the symptoms you are classified as Lupus, which mimics wolf bite symptoms. Hence Lupe meaning wolf.
I thought you might like to see a p[ost I made some time ago.
A LUPUS STORY.
My wife was diagnosed with Lupus in 1980 and given three years to live on prognosis. At the time I was in my second year of learning Osteopathy and Natural Therapy.
Horrified by the side effects of the prescribed medication, we decided that I would look into dealing with it in a naturopathic way. At my college was a young Doctor, tutor, who was part of the medical team of the Lupus division of Hammersmith hospital, and he told me this story.
Two years ago a Doctor friend, on the same team, had Disseminating Lupus and was fading fast with just a few days to live. This doctor had a theory that if you stressed the body it might just fight for life, and so it proved. He is still alive today.
Being medical they stressed his body with medication, under the patient Doctors direction and responsibility, but under no circumstances would Hammersmith do this for the general public as it was too dangerous.
To cut a long story short, we decided to stress my wife by fasting her on water only, and this we did, under supervision, for four weeks. She was then put on a vegetarian diet, gradually bringing her weight back. All this took about nine months.
She then lived a normal life, brought up two children, and after three years, took on a full time job managing a fashion shop. All was well for sixteen years and then she got fed up with watching us as a family eating meat and drinking wine (she had insisted that we ate as normally, although we all offered to become vegetarians)
The end result was that she slowly went down in health and instead of trying over again, decided that she would go down the medical route now that there was a range of new treatments available.
Sadly it has been to no avail and she is now in a lot of pain, cannot walk, only shuffle, is very weak and the quality of life is poor.
On the bright side she has out lived the original prognosis by 25years, so far, which has allowed the boys to grow up and we now have two grand children whom she dotes upon.
The moral of this story is that if you go down this route, stick to it as the price to pay for a good quality of life, although we will never know how long it could have lasted, as obviously the Lupus was lying dormant.
If anyone is interested in exactly what we did, how we did it, and why, please say so and I will happily expand on the process and give any help I can, or answer any questions.