Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
It sounds like your rheumatologist is on to it and is considering all possibilities. There are lots of really knowledgeable people, it's not quite as busy as the RA board, but I'm sure you'll still find lots of help here =]
It sounds like your rheumatologist is on to it and is considering all possibilities. There are lots of really knowledgeable people, it's not quite as busy as the RA board, but I'm sure you'll still find lots of help here =]
I also have a facebook page if you are on it, with daily lupus info and other diseases, it has all the latest research, support groups, etc. feel free to follow/like both and get well versed in autoimmune diseases. https://www.facebook.com/Mrs.lupus
I wish you luck on your journey, and I also have my story on my journey to a lupus diagnosis on my blog.
Wabby, this site used to be very busy but people come and go, and I think with facebook being so popular and having so many support groups people go there more now.
snb, pregnancy can def. bring on lupus symptoms due to the hormone increase.
Best wishes and gentle hugs! xo
@snb- Besides joint pain and swelling I am having fatigue, hair loss, weight loss, decreased appetite, ear pain/ringing with no infection, little painful red bumps on my toes next to the nailbeds that come and go, cold intolerance, poor circulation in fingers and toes (My sister has bad Ranaud's; I don't have the color changes but my toes get cold and painful and take forever to warm up), increase in skin allergy symptoms (itchy spots, hives) despite my regular antihistamine that usually prevents it. I think that's it. Yikes, that's a lot.
I am hoping to get some answers soon.
@mar- Thanks so much for the info. i will definitely look into your blog and facebook pages.
@Wabby- I actually didn't realize that Lupus and RA are treated similarly, so that is good to know! Thanks!
Common ways that Lupus is for sure diagnosed is with biopsies, such as that of the kidney and spine. I've had three biopsies, and the kidney one confirmed my Lupus diagnosis.
I hope all is well and your illness is something that will pass! Otherwise, you have us here for support :)
I'm on Plaquenil, Prednisone and just changed from Meloxicam to Naproxen due to liver problems. All these meds are used in RA, Lupus, Sjogren's and Psoriatic Arthritis (these 4 are what my doctors are narrowing down my symptoms too).
Boofy- I'm sorry to hear you were diagnosed so young. I have read of people having a confirmed Lupus diagnosis (bloods, pretty much every symptom) and having their obvious malar rash biopsied, only for it to be negative. The diagnosis still stood, but biopsies and blood tests can be wrong.
And sorry for posting twice the first time, weird stuff happens on this site sometimes!
We are trying to see if my mom could have Lupus also, she has been very sick all her life with many signs of Lupus, but she has a negative ANA and requires a biopsy to confirm anything.
I wish this disease was easier to diagnose.
I heard about Lady Gaga's parents opening a restaurant that benefits Lupus research and got excited. If there were a vaccine or a cure or even a better understanding of Lupus, that would be amazing.