Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Dear friends,
On today's front page is a story of a mother of a 15 year old daughter with Lupus. They have removed the child from the mother's custody because of medical neglect. The mother is in disagreement of the medical treatment that her daughter is receiving- cytoxan. The child is in kidney failure and the mom believes that the cytoxan is to blame. If you want to read more,log on to ctnow.com and click on the news section. At the very least, our prayers and support should help. Thanx,Lyn
On today's front page is a story of a mother of a 15 year old daughter with Lupus. They have removed the child from the mother's custody because of medical neglect. The mother is in disagreement of the medical treatment that her daughter is receiving- cytoxan. The child is in kidney failure and the mom believes that the cytoxan is to blame. If you want to read more,log on to ctnow.com and click on the news section. At the very least, our prayers and support should help. Thanx,Lyn
penny59
yes i agree .prayers....are needed ..hugs marie
Lynr
I left one doctor and sought a second opinion when told I had no choice but cytoxan. We have to retain the right to choose our treatment. In this case, the mother was making an informed decision.
deleted_user
Yes, if the decision is informed, the mother has the right to withhold or approve treatment. Also, the daughter is at an age where she can also make a decision even though she is not of legal age. There's a 16-year-old boy here in VA who didn't want to do chemo for treatment of his cancer but rather do holistic treatments, his parents were getting charged for neglect and child endangerment and it went through the legal system like crazy. In the end, the judge ruled that the boy wasn't neglected or endangered and said that he was able to make an informed decision of what type of treatment he would receive. We all have the right to choose our medical treatment.
deleted_user
She willl be in my prayers tonight.
keepingon
There must be other treatments for the girl's kidney failure right now..dialysis, transplant, ect...I don't see this as negligence, I see this as parental concern, there are options here for sure!
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