Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

yaenmilton
My mother has just diagnosed with lupus, she is very tired and hopeless but I don't know how to help her. She has experienced some symptoms of lupus for a long time before receiving the accurate diagnosis. Fatigue all the time, joint pain and skin rash make her stress out. Who can give some tips to live with lupus peacefully? Thank you so much
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- Accept this disease and learn how to live with it
- take medications following the instructions of her doctor
- Think positive
- Reduce stress by sharing her troubles with trusted people and joining some lupus clubs to learn more experience
- Avoid sunlight. Never going out between 11 a.m and 3 p.m because UV rays work strongest during the time that make your skin rash worsen
- Begin with mild exercises, such as doing yoga, walking or aqua therapy to strengthen joints and muscles
- Sleep early and take rest whenever she feels tired
- Stop poor diets, such as processed foods, fried foods or packaged foods. Instead, increase healthy food intake, you should add more leafy green vegetables, berries fruits, and omega 3 acid foods to your diet.
- Take supplement. some types of lupus supplements are effective in reducing inflammation of lupus, such as Lupufree, vitamin D3 or vitamin B12 complex.
Best wishes to your mother.
I have Undifferentiated Conn. Tissue Disease (aka, Lupus Like Illness) alone with a bunch of other medical issues. The spoon theory might be something to look into. Is she still working? If not it might be easier to use this practice. Essentially you allot yourself a number of spoons per day (say 50) and then assign a number to each thing that you have to do (for example: talking on the phone for an hour=3 spoons, cleaning the house=5 spoons, cooking a meal=4 spoons etc..). First it might serve as a learning tool (for example, where am I spending my energy. Then once you've got it down (and of course, don't discount emotional stress), you will try to stay within you allotted spoons each day. You can look this up and it might be explained better by someone else. So anyway I hope that this helps. I am going to join this group because, though I don't have all the symptoms of Lupus (as far as I know) I have many of them.