Has your rheumy tested you for Sjogren's Syndrome? Sometimes Lupus and Sjogren's go hand-in-hand.

Sjogren's disease never heard of it what are the symptoms how does it go hand in hand with lupus?

Sjorgrens Is dry eyes and dry mouth. My voice is also very hoarse now also/ it is another autoimmune disease.

Bunny103,
I have Sjogren's. My eyes have been especially bad this year. Now worse than ever, partly I think because of the inversion. I recently changed opthamologists, Thank God. The new guy is great, he put plugs in the bottom ducts and now I want him to put them in the top. The other guy didn't even mention it though I had complained on 2 diff visits. Also, I got a humidifier for my bedroom. It really has helped!

definitely look into sjogrens syndrome. I have heard so many people discuss this and have descibed exactly what you are saying. And it is an auto immune disease, which everyone says if you have one you probably have a couple because they go hand in hand. Which makes sense because having an auto immune disease means your immune system is not well. So it makes sense to develop more than one. Good luck with everything!!!!

Maybe it's also just a "Lupus" thing. I was just sure I had Sjogren's because I've been battling chronic dry eye/mouth for years. I had to give up wearing contacts years ago because my eyes were too dry. I also have had "folds" of tissue growing on my eyes over the past 6-7 years. I can tell it's getting much worse...feels like I have something in my eye all the time...drives me nuts!! I have bottles of "artificial tears" laying everywhere bc I use it constantly. Also, my vision is getting so bad that I feel almost blind sometimes!

I also ALWAYS have a glass/mug of tea/water with me throughout the day, and even have to have one on my nightstand during the night...as I ALWAYS wake up and need a drink of water. Even when I worked, I had to have my mug close to me at all times. My mouth gets so dry that my throat actually sticks together! Frightening feeling if you've never experienced it! I've had plenty of nightmares where I was choking to death...only to wake up and find that I actually am!!...and I'm grabbing that glass of water in a hurry!! I was finally tested by my 2nd Neuro for Sjogren's. He said that I did NOT have it. So I say....has to be the Lupus!
~Tonya

I would advise taking some sort of essential fat in your diet. These will help with dry eyes. Add fresh olive oil to your salads, take 1 T cod liver oil with every meal or you may take it in capsule form. Avoid dieuretics like coffee, caffeinated teas, sodas. Drink lots of pure water!!! Other essential fats are flaxseed oil (great for smoothies), Borage oil and Primrose oil.

Sleepy my eye doctor put in the plugs also and it seems to help

Hi I have a range of Auto immune disorders -all Lupus related, including Sjogren's.

I also drink plently of filtered water even throughout the night.
I also make sure I have some of the good oils in my daily diet.

I was taking flaxseed oil, but I had a wakeup call.
It seems flaxseed oil is contraindicated with a number of medications/ conditions .

I would advise anyone who takes any medication to always look for contraindications if you try anything new .
Natural products can also be a problem.

I have only just seen in another forum that probiotics could be a problem with my particular medications

Wow there is always so much to remember

cheers all