Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

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naturetree 02/21/2014

I've read that auto-immune diseases can cause depression.Not only because you feel so sick all the time but also because of the disease progress and the way it affects chemicals.
Ive had a low grade depression for many years.i remember being in therapy and talking about how crummy i felt and the therapists getting annoyed and asking me to "stop talking about your physical problems all the time"....lol................seems funny now as i remember back.What if the physical issues were the problem??Ahh therapists..
Im struggling a little with fatigue(ok a lot)..and gloominess.do any of you deal with this too?

deleted_user 02/21/2014

Fatigue - weak, tired, sore. Ah yes I feel these and other symptoms too. And because of these I wrote to myself. Here I'll share:

We wake each day and before we move

We ask Do I or am I going to, feel pain?

We slowly move as we reach for our meds

We know from the pills we gain.

We gain the right to get up and move about with less than what we had

We go through the day trying not to think if we feel good or bad.

We dont want to think of pains here and there or what happens if I do

We find ourselves doing this though so the Lupus doesnt sneak up BOO!

The sun, the sun, I use to have fun in the sun yet now I feel I must hide

With the lights dimmed down, I now spend my days with my pc inside

I think to myself will I ever stand with the sun beating on my face again

Or will I always find myself stuck in the dark without a friend

I say NO! I shall not hide in the dark or cover my hideous rash. I shall go into the world doing as I have always done.

I shall have a life full of all the wonders that Ive cherished throughout and I shall NOT give up one!

I say today is the day that LIFE has bought a new lease. For from this day forth I shall take control of my life and not let a disease.

I SAY TO ALL. Dont let life pass you by or put you in a shell, theres so much to do so lets go raise some hell!

naturetree 02/21/2014

This is really good,Chaslefire..really good.did you write this? wow.It made me smile.its all so true and inspirational.thank you for sharing..:)

emval 04/20/2014

I struggled with depression a lot, particularly prior to my diagnosis and treatment of lupus. Now that my lupus is more controlled, my depression has lessened a lot, which makes me think there is some link between depression and lupus activity. I also saw a therapist (3 actually, but the first 2 were useless) and found it to be somewhat helpful. Even more helpful was talking to friends and family and getting their support. But the biggest thing probably was getting my lupus under control.

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