Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
deleted_user
My daughter is having her third treatment today. An I.V. drip three days running. I will keep you posted on her results. So far it has just made her a little tired after the treatments.
deleted_user
I've had this book for years. I remember first reading it, and it is tough read if you're not 100%. This is not a book to read in the midst of a crisis. I think it would have been helpful if i could have read it in a "book club" type of situation, where I could have had feedback from others. Maybe because the info is SO true and SO right on the mark. It can be a little unsettling if you're feeling "off".
deleted_user
I have this treatment once an month for 6 hours. It works really well. my hair is even growing back which is nice.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
