Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
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My daughter is having her third treatment today. An I.V. drip three days running. I will keep you posted on her results. So far it has just made her a little tired after the treatments.
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I've had this book for years. I remember first reading it, and it is tough read if you're not 100%. This is not a book to read in the midst of a crisis. I think it would have been helpful if i could have read it in a "book club" type of situation, where I could have had feedback from others. Maybe because the info is SO true and SO right on the mark. It can be a little unsettling if you're feeling "off".
deleted_user
I have this treatment once an month for 6 hours. It works really well. my hair is even growing back which is nice.
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
