Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
deleted_user
My daughter is having her third treatment today. An I.V. drip three days running. I will keep you posted on her results. So far it has just made her a little tired after the treatments.
deleted_user
I've had this book for years. I remember first reading it, and it is tough read if you're not 100%. This is not a book to read in the midst of a crisis. I think it would have been helpful if i could have read it in a "book club" type of situation, where I could have had feedback from others. Maybe because the info is SO true and SO right on the mark. It can be a little unsettling if you're feeling "off".
deleted_user
I have this treatment once an month for 6 hours. It works really well. my hair is even growing back which is nice.
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
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I have my maxed amount of epidural shots of my cervical DDD....(and no one cares about my lumbar DDD)..... I've done physical therapy, muscle relaxers, Amitriptyline, Nortryptiline, desipramine.....narcotics... So I decided to go to a spine specialist and they have me on Gabapentin. Its been two weeks and it did nothing for my lumbar ever... but it did seem to help my cervical and arm/hand pain...