Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
Tell us about your personal experience with Cyclophosphamide as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?
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My daughter is having her third treatment today. An I.V. drip three days running. I will keep you posted on her results. So far it has just made her a little tired after the treatments.
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I've had this book for years. I remember first reading it, and it is tough read if you're not 100%. This is not a book to read in the midst of a crisis. I think it would have been helpful if i could have read it in a "book club" type of situation, where I could have had feedback from others. Maybe because the info is SO true and SO right on the mark. It can be a little unsettling if you're feeling "off".
deleted_user
I have this treatment once an month for 6 hours. It works really well. my hair is even growing back which is nice.
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
