hi im fairly new here too and its so beneficial venting on here with people that understand, esp when u dont want to burden your family with it. they dont really know what to say anyways. im sorry for ur pain, i have bad pain too and have to take pain pills everyday. hurts to walk stand do anything sometimes even lay down...feel free to vent whenenver i kno i do!

Hi LauraCG,
Welcome to the group. It's good to have a group of people who can understand what you're going through because they're suffering the same thing. My husband is a great guy but, like your husband, gets overwhelmed when he sees I'm sick. I hate to see him worry so I use this group as my way of sharing how I'm feeling.
How long have you had lupus? I'm sorry to read that you're feeling so badly. I hope you get some relief soon.
Take care!

Well you came to the right place to vent about PAIN!!! Lupus is usually a very painful disease. What meds are you on? Prednisone helps the best for pain that is due to inflamation, vicodine, and tramadol help with pain I take all of these. You may want to do a taper pack of pred it may take the edge off if you are not already on it. I hope you can find something to help make you more comfortable it sounds awful. Have you talked to your rheumy? If not maybe you can call in and explain what is going on and they can help you find some relief with meds. I also use a body length heating pad, I take warm showers etc. Let us know what works. Best wishes and gentle hugs.

Welcome to our group - it's a great pace to vent and share your pain!!
I'm sorry about your pain and know it too well; I also understand the guilt that our disease puts on our family.
Warm baths help me a lot - it's the best part of my day!
I hope your day gets better - hang in there!!