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Is anyone out there taking Benlysta? If so, how has it worked for you?
Had my first infusion yesterday. No changes after, but woke up this morning feeling strange. Improvement in level of pain and swelling. I am still swollen a bit, but not as bad a normal! Joints still achy, but better!
Is this for real? Or, is my brain playing tricks on my body in the hopes that this will be the treatment to work?
Interested to know others thoughts and experiences!!
Had my first infusion yesterday. No changes after, but woke up this morning feeling strange. Improvement in level of pain and swelling. I am still swollen a bit, but not as bad a normal! Joints still achy, but better!
Is this for real? Or, is my brain playing tricks on my body in the hopes that this will be the treatment to work?
Interested to know others thoughts and experiences!!
I remain hopeful, but I noticed the improvement only lasted about a day and a half. Right now I am back to where I started. Did you find that to be true for you as well?
I am praying that is the reason they stack the treatments the way they do (to build up the medication in your system so it lasts longer).
I think I may have put too much belief that this would be the cure all and am a bit disappointed that it did not last longer.
Do you notice that you are still limited on physical abilities even though you have some relief?
I went on a trip this weekend and think I may have pushed myself a little to much because I was feeling better. Don't know if this is going to be the way it is from now on but concerned that I may feel better but will still be limited in the amount of physical activity my body can handle.
My rheumy put me on Benlysta because I can not take Plaquenil (had a bad reaction to it) and methotrexate is doing nothing for me. I am going for my third treatment today. So far I have noticed minimal changes but they said it could take up to a year!