If only we could get rid of the lupus....lol!
I have this exact problem too, because my skin is so sensitive, I only have to wear a hat for a matter of minutes and I have a row of little welts across my forehead, so I just avoid being outside wherever possible, which is no fun.... so I too am particularly interested to hear any tips/advice people might have!
Thanks, Shannon

I wear a cowboy hat and everyone makes fun of me due to the fact that I live in the north east. I would suggest wearing a sweat band, with your hat. Yeah, don't we wish there was some miracle cure that was just mean Polaria! I find that very nasty, and I am sure it wasn't a joke no LOL in that post.

Get some type of hat you love and that is really breathable and lightweight. It may be a little pricer than some but if its cute and you like it you will wear it. I need to find one. I am not one who wears hats and now that I have to I need to find at least one I love. I did have a cute one I got for almost free at Walmart and someone took it. GRRRR. Off to find another one. I have a pink camo baseball hat I wear camping. Hats need to be fun for us who must wear them I think. ;-)

Hi,
You may want to look into the SPF hats which are made from really soft (and SPF treated) cotton and have a soft lining that go around the head area. They arent scratchy or cause me any irritations to my skin which normal hats can cause. They are a bit more pricey but worth it in my eyes. They can also be washed and folded up or bent to your liking (mine have a large brim). Look on Ebay as you may be able to find one for less expensive. I do know that Dillards and some department stores sell them. You could always buy one, keep the receipt/tags, not wear make up, and if it causes you a break out, return it. Other then this advice, the light headband sounds like a good idea. You can prob. find one at walmart made from a soft material used for your hair that you can put around your head.

Polaria, I think you have some serious issues or your just a freaking moron.. Why the hell would you come in here and post stupid shit like "have you ever thought about getting rid of lupus" as if we want this fucking disease you dumb ass.. People like you piss me off.. Some advice for you get a freaking life better yet see a shrink. IDIOT!!!

I really wish that I could get rid of this thing called lupus!!!! It is cramping my style!!!

If there was anyway possible to get rid of Lupus or any a.i disease there wouldn't be this support group. I would have got rid of mine a LONG time ago!!!!

You can consider using umbrella which can cover your face and the arms and legs too. It's important to cover the whole body, not just the face. some umbrella prevent UV ray too. I know it's kind of unusual here to use umbrella(but back home we use it during summer), your health is the first priority.

I blocked and reported this person. It is just another troll who wants to sell a fake cure. Don't we all wish to be rid of this awful disease, what a horrible person.

Polaria oh so you can help people cure this ugly disease??? OMG how did I not know that? Can you help me please??? You must be able to walk on water too and probably levitate as well.. Your head must be so far up ur ass you can see things that aren't real ..Your a freaking douche bag.. Seriously go see a damn therapist cause u need help..Don't you think if there was a FUUUUUCKING cure all of our doctors would have known this.. IDIOT!!

I thought I'd seen everything on this board but this Polaria takes the cake. At first I thought she was being satirical, but her later comments show her to be a support group predator. Everyone should report her.

As for sun, it's Florida outside, so I can't avoid it. Two seconds letting the dogs in and my face rash gets worse. I just can't remember to constantly put on sunscreen, a hat, and sunglasses. And when I go out I do all of those things but the rash still gets worse. I think the sunscreen aggravates it. I should move North but I can't afford to move or even buy a coat for cold weather.

Sheesh, that Polaria jerk left a bad taste in my already-traumatized-by-oral-surgeon mouth.

As we all know, other than misdiagnosis, there is no way to get rid of lupus. It's chronic and incurable. When I was first diagnosed, it was listed in the books as FATAL too. Now isn't that jolly?

As for hats, it also helps to make sure that your forehead is VERY clean before you put on a sun screen SPECIFICALLY designed for the face (because body ones can cause faces to break out). Switching to a facial sunscreen helped. Also put your sunscreen on your face 30 minutes before going outside. (I realize that it's not always practical, but if you can.) And, as others have said, get a hat that is ABSORBENT and BREATHES. Some materials are better than others. Although straw is light, it isn't absorbent. I too like the hats that fold up. I keep several in my trunk along with other emergency goods.

Tracy

I never thought to look into whether there were facial sunscreens other than those inside face makeup, which are never strong enough. Thanks for that, Tracy.