Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
I don't like being a bother to my specialists either but I've found my rheumatologist is very helpful through email since I only get to see her twice a year. My GP knows nothing about lupus and the kidney clinic only knows about kidneys. If I start feeling something out of the ordinary, I send my rheumy an email to find out what I should do and if it is something lupus related. It gives me peace of mind and keeps her informed about my progress. She has commented "I remember in an email you said this, how is that doing now?" I may have forgotten about that particular incident so it keeps her more informed as well.