Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

912 Members
7,373 Posts
0 Online
Muscles & Bones
/ Lupus Support Group

confused?

worldofblah4
worldofblah4
So confused...HI!
I have a ton of symptoms.
Psoriasis
Graves disease
Raynauds disease
Maybe RA-? He ordered more tests...
Maybe Lupus-have positive antibodies for it but not of them or something? He ordered more test
A lot of psych symptoms
Neuropathy all over-even in mouth-numb
Acne
IBS
Sinus problems
Eye problems
Dry skin/eyes/ears/nose
Nausea
Etc.
Finally see a neurologist thanks to my new rheumatologist next week thank god. But not sure what to expect or what to say or anything. I always forget things and get nervous. I think he is going to do nerve testing for the neuropathy but not really sure what that is either lol.
deleted_user
deleted_user
Patients with lupus are rapidly degrading the essential amino acid tryptophan through a pathway called the kynurenine pathway (KP). The rapid degradation of tryptophan through the KP depletes tryptophan and produces toxic metabolites that are linked to many of the symptoms you listed. Here is a study on the KP and lupus.

http://www.ncbi.nlm.nih.gov/pubmed/10834318

I am a member of a Facebook group that is currently discussing why the KP is activated in lupus and other autoimmune diseases and its association with many of the other symptoms you listed. Here is a link if you would like to check it out.
www.facebook.com/autoimmunethecauseandthecure
nanny1611
nanny1611
Hi, worldofblah4, and best wishes to you. You might want to prepare a list of your symptoms (with dates, if possible) that you can present to the neuro at your appointment. I find that doctors often appreciate a list that they can read and place in your file. That way you have a few days to prepare it, and can add to it whenever you think of something else. Plus, both you and your doctor(s) have the list as a record of your issues.

BTW, be sure to take a look at the links Kelsey24 provided. I follow the FB group that she posted, and have received lots of helpful info. Also, I've started working on my digestive issues because of that info and am seeing some positive results. I eat things such as kimchi, sauerkraut, and sourdough bread, and I drink kefir and kombucha. I no longer can eat grain-fed beef, and have purchased part of a grass-fed cow. As a result, my food no longer sits in my stomach to make me feel uncomfortable. And my skin and hair are showing signs of improvement.