Kids With Cancer Support Group

Childhood","This community's purpose is to provide a place for parents and kids with cancer to support each other. Whether you need to vent your feelings, find support in a listening ear, or are seeking advice on the medical side of things, this group is here for you through this difficult journey."

12 Members
9 Posts
0 Online
Children's Physical Health
/ Kids With Cancer Support Group

10yo newly diagnosed:(

Relli
Relli
Last Monday it was confirmed that my Nephew Seth has Rhabdomyosarcoma. We didn't know about the lump he has in his hand until about 9-10 weeks ago. Apparently he injured his hand last December and not long after a lump appeared on his palm just below his thumb. It wasn't all that painful so he didn't say much to his mum. At the time his parents were fighting and then went through a very nasty break up, which has put a huge amount of Stress on the kids. Then earlier in the year it started to grow and become painful. So his mum took him to a Dr and he was sure it was a Ganglion Cyst. But his mum just had a gut instinct that it was more than that and insisted they do further tests. So after the MRI ect were done he phone her with the news that it was cancer. He then went to the Royal Childrens in Melbourne for biopsy. He was diagnosed and then went for more tests to see if it is anywhere else in his body. So far it's in his hand, muscles, bones and probably his chest. He's going back there this week for more tests, chemo and on Thursday amputation of his hand.

He and his mum have an excellent support system. Seth's reaction to losing his hand was "well I will be the first famous one handed AFL (Australian Football League) player". Just love the kids SOOOOOOOOOOO much. Hate to think of the pain the poor little man will have to go through.

Pray for our special little man.
deleted_user
deleted_user
Kids are so amasing! We adults fall apart when we hear the word "cancer" but kids just keep moving forward.
Good luck to your nephew. And sending big hug to you!
Relli
Relli
They postponed his removing the lump from his hand and instead gave him radio therapy and chemo. But after a few months there was still live tumor in his hand, so in late November they did some amazing surgery on our little man he is coming along in leaps and bounds, but the type of cancer he has is a sneaky one, so it's just a matter of crossing our fingers. He's inspired so many people. He's had two articles in the Melbourne Sunday Herald Sun, 1 in an national womens magazine and soon will be in another smaller magazine. He goes back to school on Friday after Summer school holidays and is looking forward to having a kick of the football with his friends:)

This is the link to the latest article on him. Has a beautiful picture of two of his sisters:))

http://www.heraldsun.com.au/ipad/super-seth-has-a-brand-new-hand/story-fn6bfm6w-1225996658023
deleted_user
deleted_user
A couple years ago a little girl who's just like my little sister was diagnosed with this too. It's so scary for the family and friends, I know, but the kids are tough. My "little sis" was always wanting to play and run around even after chemo and surgeries. She'd take a break when she got too tired, but she was tough. It sounds like your nephew is too. It's not easy, but in a while he'll be a survior and he'll be able to know that he can overcome anything! My thoughts and prayers are with you and him and your family.
Relli
Relli
After being told he was in remission in March our precious little man in September was told the bad news that the cancer is back. Unfortunately he will not survive this battle this time. He has new tumours showing up in his body all the time and his body is now starting to close down. We are going down to see him this weekend for a family BBQ.
deleted_user
deleted_user
I am very very sorry about your wonderful nephew. It is sad to hear such news.
Relli
Relli
We didn't know but Seth had been visiting a friend in Geelong for a few days and was going to be staying with us on Friday night. So the kids got to play with him all Friday afternoon and Saturday till he went home. Matti, my eldest got to kick a soccer ball with him and didn't leave Seth's side the whole time. Got some great photo's and some lasting memories for the kids:)
Relli
Relli
Seth is on oxygen now and resting at home till he passes away. He is doing his best to stay in good spirits.
Posts You May Be Interested In
  • joannklingaman

    Grief

    Posted by: joannklingaman
    Last Reply: lovesloons
    11
    A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
  • ldab

    Gabapentin help anyone?

    Posted by: ldab
    Last Reply: kona50
    13
    I have my maxed amount of epidural shots of my cervical DDD....(and no one cares about my lumbar DDD)..... I've done physical therapy, muscle relaxers, Amitriptyline, Nortryptiline, desipramine.....narcotics... So I decided to go to a spine specialist and they have me on Gabapentin. Its been two weeks and it did nothing for my lumbar ever... but it did seem to help my cervical and arm/hand pain...