I was given the fodmap diet also by my Gastroenterologist. I also kept a food journal to help see which foods on the diet helped and which didn't. It helped some but not much. My experience was just like you have experienced. Then I did some research and came across the SCD diet (specific carbohydrate diet) I have been on this diet instead. It has worked a whole lot better than the fodmap. I suggest you give it a try. Also keep a journal because you will find that some foods they say you can eat will bother you. For example broccoli is allowed and I can't tolerate it at all.

I looked it up and it seems to rely on a lot of yogurt. Thats a big no for my gut. I do take probiotics though so I will look at the book.

Have you looked into gut hypnotherapy? It supposedly has the same efficacy as low FODMAP (around 70% notice improvement). And it's been studied five years out with continued relief of symptoms. Research this maybe. I'm in the middle of the elimination phase of the FODMAP diet which seems to be helping somewhat. Keep reading the reintroduction phase is crucial.

when ever I try to reintroduce food, it goes horribly and painfully wrong. To be honest I have lost interest in food entierly as most times anything I eat, makes me ill.

I was so bloated with nausea that I couldn't eat. What foods can you eat? I could not take the Probiotic pills but I could take Biobest Astro yogurt which has helped, but I see you can't eat yogurt. Garlic has helped my bloating. I have a friend who had severe constipation, who used the squatty potty for over a year now and she is fine. She got it from a Naturopath office. Don't give up!! We are here for you and we've found many lifelines. Hope this helps.

Dairy, casin. gluten, maize. tapioca, onions, garlic, apples, pears. onions.. look up the fodmop diet and that will cover most foods that I cant eat.

Garlic(strangely enough) is the only vegetable I can eat freely. Most fruits and vegetables cause IBD for me and nausea. I eat beef and eggs for protein and mostly brown and white rice to counteract the IBD. and for my carbs. You are wise to take the supplements. The FODMAP diet pointed out the really bad foods for me(squash, pumpkin,etc.) which I already knew. Just stay with what you know. Can you get a second opinion from another doctor?

I have an appointment already booked for next month with a specialist

turns out my mum has been putting onion and garlic in the soup she makes for months and I only just found out. Now she implies that its all in my head when In fact I have been having occasional crampy pains on and off and just had to hide it from her. SHe also has said that she tells people I control her by what she is 'allowed to eat' Which is total rubbish. I get migrains from chocolate but she still eats it. Same with meat and cheese. And the amount of wine she goes through.. If I could control her (not that I would want to) do you think I would allow her to have wine? It makes her sulky and bitter, Now I am concerned that when I visit the doc next month, will she try to sabotage the appointment by saying that it could be in my mind? WHen I cook for my self I have no problems and fortunatly for me, mum goes away on tuesday morning for five days to another country.

Party time for me I think.

No, it is NOT in your head!!! If your mom was suffering the way you are, she would not say that. I'm afraid the people you love most, can say the most hurtful things! Hopefully you can speak to the doc without your mom. Is this doc the specialist? Hope is ahead.

The good news is that I am booked in for a hydrogen breath test on the 20th of jan!

The bad news is that I had norovirius over the holiday and thats made my gut so much worse and set be right back. Stuff I was sort of ok with are now of the menu and things that caused mild reactions now cause pain and bloating. Mum thinks my gut is better but it isn't. I can't tell her as shed just get upset and fustrated.

If the gut test shows something then they will try me with antibiotics and anti fungals to try to reset my gut.

Thanks for all the symopathetic words guys. It really helps me.

thankyou. Ive checked the site and i looks very interesting. I'll have a read later and cerainly pass it on to the consultant. Is there a cure for it?

Sorry for the slow response. I was temporarily banned because DS thought Enteroviruses.co {I'm not typing the m to avoid any more trouble] was selling enteroviruses apparently. You definitely don't want to buy any of those. Anyway, there is no approved treatment yet but I found an article about Prozac [fluoxetine] having potent antiviral activity against Coxsackieviruses [Mom & I have Coxsackie B2 & B6 }. I'm not sure if that applies to the related antidepressants like sertraline {Zoloft}. It seems so odd that an antidepressant would also be antiviral. My mom and I are excited to try it but I want to take a high dose to make sure it kills the viruses even if there are some side effects. The only other thing that helped us was a chinese medicine called oxymatrine. It worked great for about 2 weeks but then lost effectiveness, probably because the viruses became resistant. I'm not sure if I also mentioned the Enterovirus Foundation website because as you can see all my posts and comments were deleted. You also might want to check out The Yeast Connection and The Yeast Syndrome since it appears you may have taken alot of antibiotics although I see you wisely are taking antifungals as well. Hope your healthcare provider can order the Coxsackie B and Echovirus tests with no cost to you. Just make sure they are serum neutralization only. The Enterovirus Foundation doesn't recommend Polymerase Chain Reaction tests because they miss most chronic enterovirus infections. Good luck and hope this helps.

Im niot sure hopw I can have this virus as I followed protocal afterwards. That means I didn't eat for 24 hours after last bout of unpleasantness and only drank small sips of water. Actually I didn't eat att all for three days. Just didn't feel hungry.

I'll still pass it on to the consultant.

The viruses would be infecting the cells of your GI tract and can't be flushed out if I'm understanding what you're saying. My mom and I have flare ups too and then it eases up on us. Unfortunately Coxsackie B and the Echoviruses can fend off even a healthy immune system. You could also have some Candida yeast overgrowth problems if you've taken alot of antibiotics during you're life. The Yeast Connection is an excellent book that was a national best seller and helped thousands, including a friend of mine.