Interstitial Cystitis (IC) Support Group
Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.

In terms of medication, each person is different, yet what has worked best for me is a combination of meds taken throughout the day, Levison(long time not in my medicine chest, insurance won't convert it.)sublingual oxybutynin dl, Atarax, and Elmiron. I understand the cost of medications, especially when we don't have insurance or are underinsured. About the lawsuits for Elmiron, my understanding is that it has been known to cause eye damage. I am in the process of getting approval for using by doing intermittent self-catheterization several times a week. I had several practice sessions with the NP at Urology. The great thing is that you don't need as many of the capsules, and I have had better relief. I am interested in getting feedback from others who are using it this way. The negative is that you need more things like catheters, syringes, lidocaine; the insurance has denied the Sodium bicarbonate, which mixes everything up. I did see that another person mentioned that she had to make her own sodium bicarbonate from the box of baking soda in her kitchen. In no way do I know what works for others, nor has it been a happily ever after dx'd and medications, etc. But there are those days when IC doesn't get to spoil my day. I hope that you were able to get some relief from the IC with things that are available to you.