Interstitial Cystitis (IC) Support Group
Interstitial Cystitis (IC) is a urinary bladder disease of unknown cause characterised by pelvic and intense bladder pain, urinary frequency (as often as every 10 minutes), and pain with urination. It is not unusual for patients to experience nocturia and pain with sexual intercourse. IC is also known as painful bladder syndrome (PBS), particularly outside of the USA.
Hi,
I would like to properly introduce myself. My name is Stephanie and I have had IC symptoms for about a year on and off and have just discovered this support group.
If you'd like to know my story, read on.
My doc thoguht I had a bladder infection but results were negative. then she tested for BV, bacterial vaginosis, and I never got the results of that test b/c of problems with my insurance. BUT I was put on metronadinazole and it helps. But it recurred and my new doc I was worried but after tests she said I did have clue celss for BV and since it worked gave me a script. it was too small and I recurred a month later. luckily my doc wrote me a bigger script with a refill. that seemed to help.
READ ON IF YOU'D LIKE TO KNOW HOW I TRIED TO TREAT IT NATURALLY.
but sex aggravates problems.
let's see, I also was recomeded by a friend to try tea tree oil. it seemed to help but then after a month or two dryed and burned.
then I read online natural cures for BV like a hydrogen peroxide duoche. my first douche. maybe a bad idea. maybe did nothing.
but again here I am with frequent bladder issues... I have had a lot of coffee the past weekend. i have chronic fatigue and a full time job so I am not sure how I"m going to give up coffee. however, I have recently joined a gym and bought some effective B vitamins that seem to perk me up without coffee and COQ 10 I've heard excellent things abuot for energy as well as my irritable bowel problem.
I used to believe I had canidia but could never fully give up sugar.
i also know about the raw food movement and try to incorporate them into my diet but i am low weight and need lots of protein and food in a hurry with my fulltime job.
TAKE CARE - LOVE AND SUPPORT- STEF
I would like to properly introduce myself. My name is Stephanie and I have had IC symptoms for about a year on and off and have just discovered this support group.
If you'd like to know my story, read on.
My doc thoguht I had a bladder infection but results were negative. then she tested for BV, bacterial vaginosis, and I never got the results of that test b/c of problems with my insurance. BUT I was put on metronadinazole and it helps. But it recurred and my new doc I was worried but after tests she said I did have clue celss for BV and since it worked gave me a script. it was too small and I recurred a month later. luckily my doc wrote me a bigger script with a refill. that seemed to help.
READ ON IF YOU'D LIKE TO KNOW HOW I TRIED TO TREAT IT NATURALLY.
but sex aggravates problems.
let's see, I also was recomeded by a friend to try tea tree oil. it seemed to help but then after a month or two dryed and burned.
then I read online natural cures for BV like a hydrogen peroxide duoche. my first douche. maybe a bad idea. maybe did nothing.
but again here I am with frequent bladder issues... I have had a lot of coffee the past weekend. i have chronic fatigue and a full time job so I am not sure how I"m going to give up coffee. however, I have recently joined a gym and bought some effective B vitamins that seem to perk me up without coffee and COQ 10 I've heard excellent things abuot for energy as well as my irritable bowel problem.
I used to believe I had canidia but could never fully give up sugar.
i also know about the raw food movement and try to incorporate them into my diet but i am low weight and need lots of protein and food in a hurry with my fulltime job.
TAKE CARE - LOVE AND SUPPORT- STEF
I also have CFS and IC and cannot give up the coffee no matter what I do.. It helps me get through my day of chasing after 2 small kids. It causes much pain with my bladder and I KNOW I have to not drink it to feel better.. I have had IC for many years but finally got diagnosed 7 years ago.. I have had CFS for 2 1/2 years...
I have to say that the thing that is my absolute lifesaver for BOTH conditions is Acupuncture.. It helps my bladder tons and also with energy and other wonderful CFS symptoms...
I hope you are feeling well
HUGS
Terr I'm glad you said that about the B vitamins, those are what caused this flare in me! I'm going to stop those. I'll be sure to tell my doc, writing this down. I can't drink decaf coffee I get too tired. I told my doc that and she tested my blood so when I get those results back I'll tell her. She also knows about my bladder pain. Ironically she said it isn't IC b/c I don't have blood but today I noticed the blood for the first time, I think I was in denial/taking pyrdium. It only was bloody after I drank coffee. when I drank water it was clear an hour later. so mine is not as bad as some of the ladies on here which is encouraing. I am so glad to be a member of daily strength. I am ordering some aloe a woman on here recomended and being treated for a vaginal infection that excaberates it so I have hope.
Mars, I have never had acupuncture but my roommate and many people think I should. I guess I will get that next month instead of the massage I get every three months. you know, that stuff is expensive. but worth it. so take care! thanx again!
xoxox
LOVE AND SUPPORT
stef
HUGS to you all :)
B12 alone I think would be great. you're getting other B vitamins from canteloupe, salad and other veggies and fruits.