Oh my goodness, finally someone knows or has the smae thing!
Yes I have the same $%$% thing. Everytime I tell the stupid doctors
they look at me like I'm nuts..
It literally feels like I have spasming and exruitiating pain in my kidneys.
Thank you for letting us know! I'm so sorry your going through so much pain, I will pray that you will get relief from the terrible pain.
Your right about the hopelessness, I cant take these doctors that dont know what their doing.
Hope you feel better!

yes thats exactly how it feels...i will let you know what i can find out ...

When I have a severe flare-up, my kidneys also hurt. They spasm and it feels like I have another kidney stone. When I told my urologist, he basically said I was nuts because my kidney ultrasound was normal. I hated him. But now that I've moved back home to IL, I can't find anyone to treat me! This disease is relentless. I hope you feel better soon!

I used to also get really bad kidney pain. When my pain would flare up, I couldnt lay down flat or sit back all the way. It felt like I had a softball with knives in my kidney. Yuck!!!!

Yes!!! My bladder has been getting progressively worse and my kidneys have been killing me. I'm not sure exactly how my Dr. feels about it. After a few more DSMO treatments, she is giong to scope me again. My ultrasound was also negative, but the nurses at the urology office have also heard of IC hurting your kidneys too.

Happy to see I am not alone with this pain, but sorry we all have to deal with this.

my dr said during cysto in another patient, he saw the same red spots ic makes in our bladders in the kidneys...i have been looking for info online and it seems that its a natural progression of IC since they cant cure it...

Yes! I also get pain in my kidneys when I'm having a bad IC flare. For me, it's usually my right kidney. My IC pain is always in the lower-right quadrant of my pelvis.

I've had IC for 22 yrs and literally have tried everything out there. I have a new urologist He's had me on Atarax for the last 2 mos. So far, I haven't seen any change in my symptoms. :(

i swear they just throw new meds at us in hopes we will just give in, shut up, and go away...dont let em win, keep on em...

With you all the way girl! Great attitude!

Man, I had the same experience! Years ago, I was having kidney pain on top of my IC pain, so I went to the only doctor in SC that I knew of at the time (who knew about IC) and he was such a jerk!!! I hadn't seen this particular doctor for about 2 years. He told me he could no longer help me and acted like I was nuts for coming to him with kidney pain. He said, "I'm a urologist, not a kidney doctor!" I walked out and didn't even pay for the visit. I would never go back to him ever! I went to him for a few years and let him do all his experimenting, but as soon as I told him I couldn't do anything else, he didn't want anything to do with me. So insensitive! Errrrr! I've met a few doc's like that over the years! I wish they could walk in our shoes for a few weeks so they'd know what it's like!

I wasn't sure if it was related, but suspected as much. I get terrible kidney pain from time to time as well.

I hope you will start feeling better real soon! I've had IC for 14 years now and have had the kidney thing a few times, but it always passes just as quickly as it showed up. I do hope the same will be true for you! I just wanted to give you some hope that this could be a temporary situation that will pass. That is my hope for you!
Ellen