Infertility Support Group
In vitro fertilization is one of the most common and utilized ways of treating conception problems. This support group is dedicated to those beginning their journey with IVF and needing support. Join the community and share your experiences, advice, and story with people going through similar challenges starting a family.
thewaitinggame
I just wanted to reach out, since I'm new to this support group. I'm feeling a bit overwhelmed but am reassured to know that this community of strong women is out there to offer help. :)
My TTC timeline looks a little like this:
2003-2011: Happily married and actively trying to NOT get pregnant
October 2011-March 2014: Went off birth control because I had just turned 34, knew that pregnancy became more risky @ 35 and up, and because of power outages. Yep, you heard me right! Our area had experienced a crazy storm in October that caused tons of power outages, including at the grocery store where I regularly filled my OCP prescription. So, I took it as a sign, talked with my husband, and said, to hell with it! No more birth control! At first, I was relieved when my period came each month. I was still kind of avoiding having sex on those ovulation days, didnt know if I was truly ready to be trying, and, so, was able to maintain the illusion of having control over my own fertility for a little while longer.
April 2014: The illusion ended. During a routine ob-gyn appt., I asked about these past 2+ years we had been TTC. After my husbands normal sperm analysis, I underwent an HSG test. (Most uncomfortable thing EVER!!!) My left tube was blocked. But there was still hope that we could conceive naturally on alternating months.
May-July 2014: I called this period of time, and the few months thereafter, my knowledge quest. I went to a fertility specialist (Dr. B) for a consultation. He gave me 3 options: 1. Keep trying with no intervention; 2. TTC with cycle monitoring; 3. Have an exploratory laparoscopy to investigate blocked tube & perhaps remove it. (He suspected a hydrosalpinx in the left tube, too). I chose option 3.
July 31, 2014: Surgery day. When I was coming out of anesthesia, I asked my husband, just tell me one thing Is it bad news? He smiled weakly & nodded. Yep. Its not good. It turns out that I had a burst appendix when I was a young girl. At 13. I remember this occurrence vividly. I was sick for a solid month. Couldnt go to school, couldnt even stand up straight because of the excruciating pain. My white blood cell count was sky high. Doctors pressed on my lower abdomen checking for a swollen appendix about a zillion times during that month. But the problem was that my appendix had already burst. It went undiagnosed for 23 years.
August 2014: My grieving period. I was feeling a bit beat-up following my surgery and left Fallopian tube removal, but the emotional bruises were taking a lot longer to heal. I still feel black-and-blue, really. After seeing the disgusting scar tissue & adhesions resulting from my ruptured appendix over two decades ago, I was crushed. It was a mess in there. My right tube was so covered with adhesions that Dr. B stopped the surgery and didnt even attempt to get at it, as it was too risky and he was afraid I could suffer a bowel perforation or other complications. Too many vital organs over there. All this confirmed to the surgical team that I had, indeed, suffered a burst appendix, since the adhesions were worse on the right side (near where that nasty bugger would have been, had it not exploded). I was super pissed that I THOUGHT I was master of my own fertility and fate, but never really had a choice to make in the first place. I was sterile before I even had the chance to mature into a fertile girl. (I got my first period late, @ 16, well after the appendix episode). I cried a lot, sometimes openly, but mostly at night or when I was alone, trying not to let my husband see how broken this was making me feel. My infertility became all I could think about.
September 2014: Lights (shining on my vagina), Camera (ultrasounds galore), ACTION! After what seemed like a thousand conversations on the topic, my husband and I decided to undergo what I SWORE Id never do in a million years: attempt IVF. Seriously. I was like, no way, no how, am I EVER going to make a baby in a lab. You are NOT jerking off in a doctors office. I am NOT shooting myself full of hormones. We are NOT losing the intimacy that everyone else on the planet seems to be able to enjoy when trying to conceive. Naively, before all the tests shook me into accepting the reality of my situation, I wanted to believe that our LOVE would somehow be powerful enough to allow us to conceive. We had all the right chemistry, a loving relationship, and an active sex life. Well turns out that unviable tubes trumps all that.
That brings us to the present day. We signed all our IVF-related paperwork last week. I'm really nervous about the hormone injections and that I may not feel like myself after taking them. I'm nervous about side effects. I'm nervous about the cost (since we are paying ENTIRELY out-of-pocket for this cycle). I'm nervous that it won't work. I'm nervous that it WILL work, and I won't be able to enjoy my pregnancy the way women who conceive spontaneously & naturally do. That's a lot of nervousness.
I hope my post helps you ladies sort through some of your own feelings and, perhaps, to relate to my story in some way. I wish you all strength during this difficult (and often isolating) journey through IF.
My TTC timeline looks a little like this:
2003-2011: Happily married and actively trying to NOT get pregnant
October 2011-March 2014: Went off birth control because I had just turned 34, knew that pregnancy became more risky @ 35 and up, and because of power outages. Yep, you heard me right! Our area had experienced a crazy storm in October that caused tons of power outages, including at the grocery store where I regularly filled my OCP prescription. So, I took it as a sign, talked with my husband, and said, to hell with it! No more birth control! At first, I was relieved when my period came each month. I was still kind of avoiding having sex on those ovulation days, didnt know if I was truly ready to be trying, and, so, was able to maintain the illusion of having control over my own fertility for a little while longer.
April 2014: The illusion ended. During a routine ob-gyn appt., I asked about these past 2+ years we had been TTC. After my husbands normal sperm analysis, I underwent an HSG test. (Most uncomfortable thing EVER!!!) My left tube was blocked. But there was still hope that we could conceive naturally on alternating months.
May-July 2014: I called this period of time, and the few months thereafter, my knowledge quest. I went to a fertility specialist (Dr. B) for a consultation. He gave me 3 options: 1. Keep trying with no intervention; 2. TTC with cycle monitoring; 3. Have an exploratory laparoscopy to investigate blocked tube & perhaps remove it. (He suspected a hydrosalpinx in the left tube, too). I chose option 3.
July 31, 2014: Surgery day. When I was coming out of anesthesia, I asked my husband, just tell me one thing Is it bad news? He smiled weakly & nodded. Yep. Its not good. It turns out that I had a burst appendix when I was a young girl. At 13. I remember this occurrence vividly. I was sick for a solid month. Couldnt go to school, couldnt even stand up straight because of the excruciating pain. My white blood cell count was sky high. Doctors pressed on my lower abdomen checking for a swollen appendix about a zillion times during that month. But the problem was that my appendix had already burst. It went undiagnosed for 23 years.
August 2014: My grieving period. I was feeling a bit beat-up following my surgery and left Fallopian tube removal, but the emotional bruises were taking a lot longer to heal. I still feel black-and-blue, really. After seeing the disgusting scar tissue & adhesions resulting from my ruptured appendix over two decades ago, I was crushed. It was a mess in there. My right tube was so covered with adhesions that Dr. B stopped the surgery and didnt even attempt to get at it, as it was too risky and he was afraid I could suffer a bowel perforation or other complications. Too many vital organs over there. All this confirmed to the surgical team that I had, indeed, suffered a burst appendix, since the adhesions were worse on the right side (near where that nasty bugger would have been, had it not exploded). I was super pissed that I THOUGHT I was master of my own fertility and fate, but never really had a choice to make in the first place. I was sterile before I even had the chance to mature into a fertile girl. (I got my first period late, @ 16, well after the appendix episode). I cried a lot, sometimes openly, but mostly at night or when I was alone, trying not to let my husband see how broken this was making me feel. My infertility became all I could think about.
September 2014: Lights (shining on my vagina), Camera (ultrasounds galore), ACTION! After what seemed like a thousand conversations on the topic, my husband and I decided to undergo what I SWORE Id never do in a million years: attempt IVF. Seriously. I was like, no way, no how, am I EVER going to make a baby in a lab. You are NOT jerking off in a doctors office. I am NOT shooting myself full of hormones. We are NOT losing the intimacy that everyone else on the planet seems to be able to enjoy when trying to conceive. Naively, before all the tests shook me into accepting the reality of my situation, I wanted to believe that our LOVE would somehow be powerful enough to allow us to conceive. We had all the right chemistry, a loving relationship, and an active sex life. Well turns out that unviable tubes trumps all that.
That brings us to the present day. We signed all our IVF-related paperwork last week. I'm really nervous about the hormone injections and that I may not feel like myself after taking them. I'm nervous about side effects. I'm nervous about the cost (since we are paying ENTIRELY out-of-pocket for this cycle). I'm nervous that it won't work. I'm nervous that it WILL work, and I won't be able to enjoy my pregnancy the way women who conceive spontaneously & naturally do. That's a lot of nervousness.
I hope my post helps you ladies sort through some of your own feelings and, perhaps, to relate to my story in some way. I wish you all strength during this difficult (and often isolating) journey through IF.
We went to the clinic today to produce an SA for further testing. And again, you're right... Togetherness is KEY in this whole process. I'm sure this could put a huge strain on lots of people's relationships; but, if anything, it has made ours even stronger.
Thanks for your input and helping me to see all that I DO have, not just focus on what's missing. :)
I'm very lucky to live in MA where coverage is mandated by law, but my company fit into the loop hole and didn't cover it. I asked for coverage and it took 11 months, but they finally said yes. That wait sucked, but it did help me get to the stage of accepting IVF. There are websites dedicated to helping people get coverage, so if you are up for it, maybe it's worth asking.
My first step was meeting with the person in HR who was responsible for benefits and made sure I understood the current coverage. I then told her I would be dropping our insurance and getting public insurance because I paid into our plan and couldn't use it. I asked her if they would cover it before I dropped insurance. She got a consultant from our insurance company to prepare a presentation, and then we finally had the committee make a decision. It took so long because the original consultant did a bad job, so they fired her and got a new one. Then the meetings were spaced out. And my company tends to beat a dead horse with every damn decision they make. The decision could have been made very quickly, and was no issue at all with adding the coverage. The hold up was my company dragging their feet.
I sent this letter (link below) to HR which they didn't actually need because the consultant gave them more stats directly related to our company. But the letter is great. It proves that adding coverage does not cost any more, so adding it in, would be pretty easy (especially for a company that is in a state with a mandate.). They just call and say, "uncheck that box that says we exclude the coverage". Then it's done and active right away.
http://familybuilding.resolve.org/site/PageServer?pagename=lrn_ic_empletter&JServSessionIda004=wp81gwj7l1.app212d#.VC1FqudaS_g
I'm all for anyone who is up for it, to ask for coverage. It is my dream that us infertiles begin to demand coverage. I plan to do it at any job I have.. even if I'm 60 and well beyond baby making years. Not having coverage (even for just one cycle) if absurd! Why should we pay for someone's medical bills after they smoke for 30 years, but we can't get this covered when we have done nothing to cause it. I could go on and on! :)
I wish you luck if you do go ahead with it, and totally understand if you are not up for it. Just knowing it's an option is good.
Your last few paragraphs struck a chord in my heart:0) I am a very careful person when it comes to medicines of any kind. I am weary of putting stuff into my body including something as simple as a sugar free cough drop for a sore throat.
After we found out just how re productively challenged we were, I had really rough moments of grieving. I grieved for a whole body, I grieved over my broken body I grieved over the fact that we couldn't just simply have a hot steamy moment and get a precious end result nine months later, I grieved over our finances because infertility treatments are so stupid expensive.
After I went through all the hard emotional moments it boiled down to one question for me: 'How bad do you want this" We wanted a child so much that our hearts desire for a child trumped all the crazy things we would have to go through to get that beautiful bundle of love. It's worth it! I have been a DS member and part of this infertility support group for almost six years now and it's been a wonderful outlet for me. The women I meet and connect with on here are so precious, kind, and encouraging of one another. This has been a healthy outlet for me to pour out and share my journey. I'm not sure I would have made it this far without being able to spill my guts out on the personal journal option on here:0)
You can do this friend!! You will need: a little bit of strength, a sense of humor, a little bit of peace, a sense of humor, determination, and a sense of HUMOR. If you have those components going into your IVF cycle you will do great :0)
June 2012 When my best friend has IF problems at 35 I thought I should go and get tested just to see where my numbers where. My AMH and FSH weren't great on the low end for my age but still not dismal. .75 and 8.
I didn't start IVF at that time because I was not ready to give up that I might meet Mr Right and try and get pregnant.
June 2014 I decided it was time that I needed to start. i had been dating a nice man that had had a vasectomy because he had two older children and was going to be there for me.
I have had an HSG - Clear tubes
hysteroscopy - x2
D&C - to remove 2 polyps
I started Lupron last week
First ultrasound without stims has 4 follices left ovary 4 on right ovary
Tomorrow I have next u/s.
Start Menopur Sunday
Start HGH Sunday
Start Viagra suppositories Sunday
My retrieval should be October 30 and 31.
My transfer should be November 4 or 5th.
Unfortunately my nice man had gotten scared by this process we have split. Don't really need this emotional stress or toll during this this time, but I am not going to put my life on hold until he figures out if he loves me enough to get past his fears. ( and I've already dropped a crap load of money on this cycle of IVF that I am not going to lose.
So I'm scared it won't work... I'm scared it will work....
Did I mention I am scared?
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