Just wanted to see if anyone else has similar issues with being having selective IGA. I have been sick for a year now and in and out of hospitals and clinics, also been treated for everything under the sun and they still can't really figure out what is wrong. I am waiting on an immunologist appointment at the end of Janurary but with how bad it has become I need to find something to help.
Started out with stomach pains and they started to get pretty bad so I went to a clinic. They poked at me for a bit and because I have a higher stress job (now reduced to low stress as I was told it would help) and said I had an ulcer and gave me ulcer medication. Finished that and the pain got worse. They then thought I somehow no longer had the appropriate stomach lining and gave me more pills. Did nothing. Went to the hospotal multiple times they took blood and did tests and I was told every time "there is nothing medically wrong with you". Even though I had extreme stomach pain and was crying and writhing in tears and vomitting.
I was finally referred to a GI specialist as they thought I had Ulcerlative Colitis, Chrons, IBS, Inflammatory bowel disease, lupus, parasites, h pylori, bacteria, candia, celiac, tested for all foreign diseases since I travel and big NOTHING. Waited 6 months for an endoscopy and colonoscopy and they found nothing. Perfectly healthy... I had to wait 3 months for the test results as I was a low priority since there was no hard evidence and they took more blood. My Dr was convinced I was Celiac but the tests always came back negative. They then found that I make 5% of the required IGA and I am now a higher priority on the immunologist list. From what I have read there is no cure and very little support for this kind of thing but I suppose since most people do not react and I seem to be one of the few that have severe issues I am a little in the dark.
Here is how my day goes, nearly every day.
Wake up- feel great and think "okay today is going to be a good day"
Go to the bathroom and slowly my stomach starts cramping, then more, and more, until I am crying in the bathroom. Like if you were passing glass.
I then get waves of hot and cold flashes. Like I am freezing to death in a blizzard to someone dumping lava on me. This starts the cycle. Start getting warmer and warmer until I feel like I am going to erupt into flames and I start vomiting mucous and white foam (yup, like dish bubbles. The Dr's were all VERY confused by this as I do not vomit stomach contents) Once the vomiting has stopped I then feel like I have been dropped in the arctic and start shivering uncontrolably. It slowly starts to subside and I warm up only to have another extreme wave of heat. This continues for an undetermined amount of time. Some days it is 15 minutes, or 3 hours. my nose starts to run and I feel like I have a full on flu. Eyes watering as well.
I found sometimes that bundling myself up but sitting infront of the A/C helped stop the hot/cold but it was only a temp fix.
I was on a 2 hour flight and this started. The cycle kept going for 3 hours and they were ready to divert the Aircraft, worst day since I have been sick May 12th. I work in Aviation and was able to convince the crew that this is just how I am because I am sick.
Once my stomach decides it has had enough the pain slowly goes away and I am back to about 75% but with being drained of all energy and fine for most of the day.
I have gotten impetego (toddlers infection of the skin) and severe pneumonia for 3 months. I was given some hardcore antibiotics and I was doing well for a few weeks. But I am now slowly going back to how bad it was before. I have heard that cold climate is not good for people with IGA issues and I unfortunately live in a very cold area in Canada.
Medications: Oil of oregano, Anti-histamine, pro-biotic.
Any help is greatly appreciated.
Why the sudden urgency? I. So afraid of not making it in time☹
The short version of my long story is that it began in 1996 with an unknown illness. Chronic flu like symptoms for years, followed by chronic sinus infections and now IBS. I have vacilated between trying to reaseach and heal myself and acceptance. Currently I'm here because I am getting frustrated with persistent symptoms post flu. A lack of IgA seems likely. Someone mentioned no dairy. Dairy...