Just wanted to see if anyone else has similar issues with being having selective IGA. I have been sick for a year now and in and out of hospitals and clinics, also been treated for everything under the sun and they still can't really figure out what is wrong. I am waiting on an immunologist appointment at the end of Janurary but with how bad it has become I need to find something to help.
Started out with stomach pains and they started to get pretty bad so I went to a clinic. They poked at me for a bit and because I have a higher stress job (now reduced to low stress as I was told it would help) and said I had an ulcer and gave me ulcer medication. Finished that and the pain got worse. They then thought I somehow no longer had the appropriate stomach lining and gave me more pills. Did nothing. Went to the hospotal multiple times they took blood and did tests and I was told every time "there is nothing medically wrong with you". Even though I had extreme stomach pain and was crying and writhing in tears and vomitting.
I was finally referred to a GI specialist as they thought I had Ulcerlative Colitis, Chrons, IBS, Inflammatory bowel disease, lupus, parasites, h pylori, bacteria, candia, celiac, tested for all foreign diseases since I travel and big NOTHING. Waited 6 months for an endoscopy and colonoscopy and they found nothing. Perfectly healthy... I had to wait 3 months for the test results as I was a low priority since there was no hard evidence and they took more blood. My Dr was convinced I was Celiac but the tests always came back negative. They then found that I make 5% of the required IGA and I am now a higher priority on the immunologist list. From what I have read there is no cure and very little support for this kind of thing but I suppose since most people do not react and I seem to be one of the few that have severe issues I am a little in the dark.
Here is how my day goes, nearly every day.
Wake up- feel great and think "okay today is going to be a good day"
Go to the bathroom and slowly my stomach starts cramping, then more, and more, until I am crying in the bathroom. Like if you were passing glass.
I then get waves of hot and cold flashes. Like I am freezing to death in a blizzard to someone dumping lava on me. This starts the cycle. Start getting warmer and warmer until I feel like I am going to erupt into flames and I start vomiting mucous and white foam (yup, like dish bubbles. The Dr's were all VERY confused by this as I do not vomit stomach contents) Once the vomiting has stopped I then feel like I have been dropped in the arctic and start shivering uncontrolably. It slowly starts to subside and I warm up only to have another extreme wave of heat. This continues for an undetermined amount of time. Some days it is 15 minutes, or 3 hours. my nose starts to run and I feel like I have a full on flu. Eyes watering as well.
I found sometimes that bundling myself up but sitting infront of the A/C helped stop the hot/cold but it was only a temp fix.
I was on a 2 hour flight and this started. The cycle kept going for 3 hours and they were ready to divert the Aircraft, worst day since I have been sick May 12th. I work in Aviation and was able to convince the crew that this is just how I am because I am sick.
Once my stomach decides it has had enough the pain slowly goes away and I am back to about 75% but with being drained of all energy and fine for most of the day.
I have gotten impetego (toddlers infection of the skin) and severe pneumonia for 3 months. I was given some hardcore antibiotics and I was doing well for a few weeks. But I am now slowly going back to how bad it was before. I have heard that cold climate is not good for people with IGA issues and I unfortunately live in a very cold area in Canada.
Medications: Oil of oregano, Anti-histamine, pro-biotic.
Any help is greatly appreciated.
I'm glad this site is still up and running but I really missed the layout of the old website. It was much easier to read people's post and connect with people because it had a chat feature on here and it was just easier to navigate through. I wish they would make the layout a little bit better than what it is now...