Hi, my daughter is 11 months, she was diagnosed with hypotonia 2 months ago and is getting input from SALT and physio. We are still waiting for her first paediatrician appointment. Her low muscle tone seems to be worst in her trunk and neck. We are so new to this but already have had our ups and downs . She can now sit which is great progress, but today she has been started on thickened fluids as her swallow isn't safe. I'm scared as to what all this means for her and for us as a family. I'd love any advice on managing the initial diagnosis and any positive stories. Thanks.
Hello my 7 month old son has Hypotonia. I'm hoping to meet others with experience so that I can prepare myself for what is to come. Does any one have any good places to start for research? He has OT once a week.
Hello, my name is Ashley, my almost 10 month old daughter, Brooklyn has been diagnosed with hypotonia/muscle weakness. This journey has been a struggle for us as Brooklyn has other issues related to her hypotonia (laryngomalacia, dysphagia, developmental delay, obstructive apnea, GERD just to name a few) I have found it extremely hard to find anyone that has it is dealing with similar issues. As...