Hypothyroidism Support Group
Hypothyroidism is the disease state caused by insufficient production of thyrohormone by the thyroid gland. There are several distinct causes for chronic hypothyroidism, the most common being Hashimoto's thyroiditis and hypothyroidism following radioiodine therapy for hyperthyroidism. Advanced hypothyroidism may cause severe complications, the most serious one of which is...
Sorry for the reason you're here but, glad you found us.
helerown gave you some good tips re diet and exercise.
I'd like to address the thyroid labs that motivated your doctor to lower your dose. Has your doctor been checking anything other than TSH?
If not, you might want to talk to him/her about not only checking pituitary hormone TSH but, the actual thyroid hormones: FreeT4 and FreeT3.
Once a person has thyroid disease and/or is missing all/part of the thyroid, the HPT (hypothalamic-pituitary-thyroid) feedback loop is interrupted. Looking at pituitary hormone TSH tells us nothing about thyroid function.
Optimizing your FreeT4 *and* your FreeT3 levels are key to wellness.....that's what finally enabled me to lose the 7 lbs. I gained when I became hypo.
Please feel free to share your labs here and we'll show you how to interpret them. You'll need to post the reference ranges for each result since different labs use different ranges and your results can only be properly interpreted within the context of your lab's ranges. In addition, please know that this site has a bug that doesn't allow posting of special symbols along with numbers. Here's an example of a site-friendly way to post labs:
FreeT4 1.7 range .82-1.76
Looking forward to hearing from you again!
My last last results were as followed
Free T3 @ 5.24 9 (Ranges - low is 4, High 8.30)
Free T4 @ 13.73 (Ranges - low is 9, high is 20)
TSH @ 1.04 (Ranges low 0.25, High 5
What do you think?
If you think about it, it makes sense for doctors to adjust our meds so our levels are similar to those a healthy person would have.
Thyroid textbooks indicate that healthy people have FreeT4 levels near the high end of the range and FreeT3 levels in the upper third/upper quarter of the range.
FreeT4/T3 levels around 60-80% of range is a reasonable treatment goal. Once those types of levels are achieved, it's appropriate for the doctor to make minor dose adjustments to eliminate any residual symptoms and help the patient identify his/her own optimal levels (called "setpoints")
Just to give you an idea, based upon your lab's ranges, 60-80% of range would mean a FreeT4 level around 15.6 up to 17.8 and a FreeT3 level around 6.58 up to 7.44.
Some people discover that they need their levels a little higher than this (I am one of them). A few people need their levels slightly lower than this. No one feels good with levels below mid-range.
As you can see, both your FreeT4 and FreeT3 levels are lower than the lowest level most people find comfortable. In fact, they are both below mid-range.
This could very well be contributing to your weight issues.
The way to increase those levels is to increase the dose.
What was the doctor's reasoning behind lowering your dose?
I'm not sure if you're familiar with other symptoms of hypothyroidism. I suspect you are dealing with more than weight issues.
While the site I will link below contains a lot of inaccurate information, it does have a comprehensive list of ways hypothyroid levels can affect us.
http://www.hypothyroidismrevolution.com/hypothyroidism-symptoms/
Not everyone will have every symptom/condition on the list. Each of us usually has his/her own typical cluster of symptoms.
Optimal levels = no thyroid symptoms
I hope you can convince your doctor to put you back on 125mcg and push him/her for dose increases as labs/symptoms dictate.
Prior to this, below were the results, perhaps, that's why she reduced??
Free T3 -3.79
Free T4- 4.77
TSH 55.55
Conclusion, Severe Hypothyroidism. Thats when i was on 125mg
Your most recent results are better but, still very hypothyroid.
I think your doctor is confused by the improvements in your TSH. Unfortunately, many doctors get confused with TSH and they are the ones that keep us sick.
Please remember that TSH is a pituitary hormone and not a reliable indicator of thyroid status.
It's those FreeT4 and FreeT3 thyroid hormone levels that need to be optimized.
You already know the rest based upon my previous post :)
You really need to be back on 125mcg and will probably need a few more dose adjustments.
Many of us have been able to get dose increases by pointing out to the doctor that our FreeT4/T3 levels aren't even mid-range and have room to increase while still being in the normal range.
I'm sure you have other symptoms besides weight issues. It makes sense to share *all* of them with the doctor.
In fact, keeping a journal was instrumental to me with identifying my optimal levels and getting the proper care.
Here's a thread I wrote about it:
http://www.dailystrength.org/c/Hypothyroidism/forum/14455047-journal-success
Thanks so much for the feed back and encouragement.
I just did my monthly test, and the results are;
Free T3 Value 5.92 (Low: 4- High -8.3)
Free T4 Value (Low : -9- High -20)
TSH: Value 3.92 (low 0.25- High 5)
Do you think i should still be on 100mg Thyroxine. Meanwhile i think am piling at least a Kilo every 4 days.
Am getting quite worried.