Hypogonadism Support Group
Hypogonadism is a medical term for a defect of the reproductive system that results in lack of function of the gonads. The gonads have two functions: to produce hormones, activin and to produce gametes. Deficiency of sex hormones can result in defective primary or secondary sexual development, or withdrawal effects (e.g., premature menopause) in adults. Defective egg or...
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Hello, everybody! The state of me is really desperate and depressed ,so I figured out I could seek help or any kind of advice here . So ,to begin with, I am 20 years old and have never had any kind of health issues and my family does not have a history in endocrine-related problems. I have recently been diagnosed with partial hypopituitarism(secondary hypothyroidism and secondary hypogonadism) and I am still in the middle of nowhere in the diagnostic of the problem.
It all started 3 months ago. I used to lead a really active life I went to the gym every day and ,played football 2-3 times a week, studied intensively at university and worked part-time in a disco. I used to be really sporty, muscular and happy person. I started having a chain of symptoms ,which came one after the other and are all present today, many of them gotten extremely worse and unbearable :
-extreme fatigue
- dry mouth , polyuria (about 6l per day) and nocturia wake up to go to the toilet twice every night
- severe constipation my bowels just dont work anymore. One day 3 months ago,I got constipated and since then I have not been on my own in the toilet. Need to overdose with laxatives every 4-5 days to keep my bowels relatively clean.
- Complete muscle loss and joint pain I have lost all my muscle mass during these months and my whole body is aching every single day now I sleep 10 hrs a day and lie in bed another ten.
-weight gain not that noticeable,since I barely eat.that constipation is killing me!!!
- Fat gain on thighs and face,abdominal fat
- Low blood pressure ( 80/40) and heart pulse (40 per min)
- Ringing in the ears 24/7
- Dry hair and face
-Loss of pubic hair and absolutely NO libido,erectile disfunction
- Brain fog I cannot think straight at all!
So after a long time suffering and different doctors , I got my hormone tests done several times and here are the shocking results :
TSH 2.3 mU/l (0.270 4.2)
FT4 10.59 pmol/l (12 22)
FT3 2.24 pmol/l (3.54 6.47)
LH 2.62 mU/ml (1.5 9.3)
FSH 1.16 mU/ml (1.4 18.1)
Testosterone 2.9 nmol/l (8.64-29)
Free T - 0.0446 nmol/l
Cortizol 920 nmol/l (171 536)
Estradiol 153.63 (0 146.1)
Prolactin 2.71 ng/ml (3.9 19.7)
Growth Hormone (serum) 0.747 ( less than 7 )
IGF1 157.4 ng/ml (110 489)
Given these results,I got diagnosed with secondary hypothyroidism, hypogonadotropic hypogonadism and hypercortisolism ( high cortisol was measured 3 times in a serum tests,now I am waiting for my saliva test results).They tried a test with Clomid (Clomifene citrate) to trick the pituitary into producing Testosterone ,but it did not give any results.They did a CT on my pituitary,wich showed no tumors , but now I will be doing a MRI to make sure,because the doctors just dont find any normal reason for the state of me. I have never had head traumas and contact with radiation and so on.Everything is going really slow now I did the Dexamethasone- Cortisol suppression test(To check for Cushings syndrome) and I have to wait 2 weeks for the results to come .My condition is getting only worse it is like a survival every single dayThey wanted me to start Levothyroxine 50mcg and I have been drinking it for 2 weeks ,but I think It makes me feel even worseShall I stop it and wait till they do the MRI of the brain and until the proper diagnosis is 100% sure? I am afraid of starting a life-long treatment, I am really scared of taking Testosterone and FT4,GH and so on,because ,the side effects will basically ruin my life(if not already ruined). I am only 20 years old ,used to be really muscular and sports personIt is like the devil messed up my life out of nowhere. I am extremely depressed already.
So,how would you comment the test results? Any sort of advice is highly appreciated!I am scared to death and I just want my normal life back I cant keep struggling like that,It is just not worth it. Thank you in advance!!!
It all started 3 months ago. I used to lead a really active life I went to the gym every day and ,played football 2-3 times a week, studied intensively at university and worked part-time in a disco. I used to be really sporty, muscular and happy person. I started having a chain of symptoms ,which came one after the other and are all present today, many of them gotten extremely worse and unbearable :
-extreme fatigue
- dry mouth , polyuria (about 6l per day) and nocturia wake up to go to the toilet twice every night
- severe constipation my bowels just dont work anymore. One day 3 months ago,I got constipated and since then I have not been on my own in the toilet. Need to overdose with laxatives every 4-5 days to keep my bowels relatively clean.
- Complete muscle loss and joint pain I have lost all my muscle mass during these months and my whole body is aching every single day now I sleep 10 hrs a day and lie in bed another ten.
-weight gain not that noticeable,since I barely eat.that constipation is killing me!!!
- Fat gain on thighs and face,abdominal fat
- Low blood pressure ( 80/40) and heart pulse (40 per min)
- Ringing in the ears 24/7
- Dry hair and face
-Loss of pubic hair and absolutely NO libido,erectile disfunction
- Brain fog I cannot think straight at all!
So after a long time suffering and different doctors , I got my hormone tests done several times and here are the shocking results :
TSH 2.3 mU/l (0.270 4.2)
FT4 10.59 pmol/l (12 22)
FT3 2.24 pmol/l (3.54 6.47)
LH 2.62 mU/ml (1.5 9.3)
FSH 1.16 mU/ml (1.4 18.1)
Testosterone 2.9 nmol/l (8.64-29)
Free T - 0.0446 nmol/l
Cortizol 920 nmol/l (171 536)
Estradiol 153.63 (0 146.1)
Prolactin 2.71 ng/ml (3.9 19.7)
Growth Hormone (serum) 0.747 ( less than 7 )
IGF1 157.4 ng/ml (110 489)
Given these results,I got diagnosed with secondary hypothyroidism, hypogonadotropic hypogonadism and hypercortisolism ( high cortisol was measured 3 times in a serum tests,now I am waiting for my saliva test results).They tried a test with Clomid (Clomifene citrate) to trick the pituitary into producing Testosterone ,but it did not give any results.They did a CT on my pituitary,wich showed no tumors , but now I will be doing a MRI to make sure,because the doctors just dont find any normal reason for the state of me. I have never had head traumas and contact with radiation and so on.Everything is going really slow now I did the Dexamethasone- Cortisol suppression test(To check for Cushings syndrome) and I have to wait 2 weeks for the results to come .My condition is getting only worse it is like a survival every single dayThey wanted me to start Levothyroxine 50mcg and I have been drinking it for 2 weeks ,but I think It makes me feel even worseShall I stop it and wait till they do the MRI of the brain and until the proper diagnosis is 100% sure? I am afraid of starting a life-long treatment, I am really scared of taking Testosterone and FT4,GH and so on,because ,the side effects will basically ruin my life(if not already ruined). I am only 20 years old ,used to be really muscular and sports personIt is like the devil messed up my life out of nowhere. I am extremely depressed already.
So,how would you comment the test results? Any sort of advice is highly appreciated!I am scared to death and I just want my normal life back I cant keep struggling like that,It is just not worth it. Thank you in advance!!!
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