Good luck on all your tests.Hope the sestamibi scan shows the bad gland, sure makes it easier.Let us know

Brenden,
I know you said Calcium tests are normal but are you getting both Ionized and Total Serum Calcium tests done, In many cases Total Serum will be normal but ionized is not. That is why this test is important when you have high PTH as it helps to more easily confirm a diagnosis of Primary Hyperparathyroidism,
Good luck with your sestamibi scan and here's hoping they find an adenoama. However, if they do not remember many people on this and other forums were not identified on the sestamibi scan, Keep us posted

Hi,

Yeah, the odd trend seems to be that my serum is on the higher side when my ionized is in normal range, and my ionized is high when my serum is between 9.7-10.1. My PTH has never been below 50, once at 60, once at 70 and most recently at 100. Had a 390 I believe on my 24 hour urine calcium, and had calcium oxalate in a spot urine test done 3 weeks ago. Am doing another 24 hour this week.

Regards, Brenden.

Brendan,

I posted once or twice before. I am glad that your PTH is definitive. I too had a PTH of 100, but my Ca was always just upper normal. A key will be to look at your phosphate level. That should be LOW in primary hyperpara. I had a positive sestamibi for a left lower adenoma which was removed non-invasively. I defy anyone to see the scar. Good luck. BTW, my PTH has been now consistently around 25 and my Ca 9.5.

Cliff

Cliff
Is that always the case with phosphate being low with HPT? Mine has never been low but I have no symptoms and have a family history of hypercalcemia.

Brenden, congratulations on having a high PTH level!

(Little hyperparathyroidism joke, there.) ;^)

Note regarding Phos--mine was low but near-normal, even after what I estimate was 12 years of pt gland dysfunction in primary hpt. Since surgery, it has normalized.

cc,

you should have a 24 h urine done for Na, Ca, creatinine etc. The phosphate is usually love in primary hyperparathyroidim Check it out.

Cliff

Cliff
Had the 24 hour test and it was normal.

For me, my serum calcium has almost ALWAYS been normal. Only once in all these years (since 2000) has it been high yet my serum is almost always high. My PTH was 265 Dec 2012, now its around 90-135 depending on day/lab etc. My urine calcium has fluctuated also. My sestamibi was negative but I had an US that was "probable" haha...I see a surgeon on Tuesday.

I hope you get the answers you need. But, from my long battle of over several hundred kidney stones..One thing I have learned the hard way. You MUST be your own advocate..

Sad, but true~

Good luck with your DEXA scan and with your sestambi scan!

Greetings,

Had the DEXA last Thursday and am awaiting the results. Had the sestamibi scan today and it took 2 hours. 10 minutes, then wait a half hour, then a 360 degree scan that took a half an hour, then another 10 minute scan. I am expecting it to be negative, because that's just how it goes for me. We'll see. Thanks for all the well wishes.

Regards, Brenden.

Hi Brenden
Please don't get discouraged if sestamibi with spect is negative. This unfortunately happens to so many, Also a resason I think why so many look elsewhere for answers. As noted on Dr. Norman's site this occurs often. Medically that is why there are many medical journals that discuss the various diagnosing imaging. There is ultrasound, MRI, sestamibi and also 4d CT.
Still many with a clear diagnosis of both high calcium and high PTH the sestamibi scans are negative. In these instances that is why surgery is done to explore and find the diseased gland.