Hypermobile Syndrome Support Group
Hypermobile syndrome is characterized by the ability to move a joint beyond normal range. People with hypermobility syndrome may develop other conditions caused by their lax connective tissues. These conditions include Gastroesophageal Reflux Disease (GERD), Irritable Bowel Syndrome (IBS), varicose veins, flat feet, scoliosis, sprains, tendonitis, and bursitis.
Maybe Dx'd. I have never been very flexible and have never had a dislocation, only one broken bone too. I am 25. My pain started around age 22 in just one knee , and was incredibly mild. then it went away. A few months later both knees hurt, but again went away. It followed this pattern until last November when the pain spread to ankles, ball of foot, hips, elbows, shoulders, thumbs and palms of hand at the base of the fingers and it is quite severe. I also have extreme fatigue but I sleep alright with Ambien. Also increased photo sensitivity. I guess what I would like to know is if anyone else has had this experience with BJHM and what their physical therapy is like. Thanks!
Afriel
oh, all I can do is touch thumbs to forearm and pinkies past 90 degrees, so that is the 4 that my rheum is using for the Dx.
deleted_user
No I have pain but that wasn't how I was diagnosed there is so much more to it I am now 31 I have EDS and with that I can hyper extend every joint in my body and bc of having EDS I have RA, OSTEO, FIBRO, degenerative disc disease, endometriosis, hearing loss, a really bad stigmatism, and now have 3rods in my lower spine and wear hearing aids, I can only walk about 10 mins and sit 10 mins there is now nothing more they can do for me and also they just found something wrong with my lymphatic system so Dr's goals right now are to keep me comfortable oh and I have a prolapsed mitral valve in my heart that is getting worse you'll find that they can treat each system but can't fix the underlying problem EDS so I will pray for you that they miss diagnosed you!!!!
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