Hyperhidrosis Support Group
Primary hyperhidrosis is the condition characterized by abnormally increased perspiration, in excess of that required for regulation of body temperature. Some patients afflicted with the condition experience a distinct reduction in the quality of life. Sufferers feel at a loss of control because perspiration takes place independent of temperature and emotional state.
After the operations my hands and feet were 80%-90% dry, and have stayed the same since. However, be very, very careful if you do consider surgery. Here's a brief version of my story over the last fourteen years:
Around early 2002 I developed severe compensatory sweating on my back, stomach, sides, chest and legs. The level of sweating has increased since it started (I remember having compensatory sweating on my legs after ETS, but 9-12 months after Lumbar Sympathectomy it spread to other named areas).
Compensatory sweating has had a huge negative impact on life. Can often only walk for 5 minutes before am sweating profusely all-over.
Other side-effects of surgery:
- Heat intolerance, and my whole body constantly feels overheated, including my face, which leaves me always looking and feeling flushed.
- Lack of emotional feeling (for example unable to cry since the operations, even at funerals)
- Tiredness and severe loss of energy
- Frequently feel dehydrated, no matter how much water I drink
- Headaches
- Burning feeling, especially in the back, but also stomach, chest, legs etc.
- Often feel faint because of heat intolerance, even in mild-cool weather
- Dizziness
- Compensatory sweating makes everyday life extremely embarrassing/difficult. This has led to depression and very low self-esteem, morale and confidence (far worse than pre-surgery)
- Now sweat very little (much less than a normal amount) from underarms, face, scalp, forehead and neck. Forehead gets very dry and itchy. Hands and feet are also extremely dry, even after a 60 minute treadmill workout.
I'm sorry if this is scary (it's not my intention!), I just wanted to try and paint a picture of what CAN sometimes happen, speaking as someone with many, many years experience.
Best of luck whatever you do.
Regarding your ETS surgery, did they cut or clamp? Also, where did they cut or clamp (etc. T3, or T4)? I have read that this makes a difference.
Thank you,
ghost12345
Seattle Swedish Medical Center, Thoracic surgery division is doing a research project on patients who have had an endoscopic thoracic sympathectomy from 2004 until 2015 here at Swedish. Patient participation includes just a quick phone call. If you, or you know someone you know has had an ETS with us, we are probably trying to contact you. If you fit this criteria, and you haven't received a phone call, please let me know and we can find another way of contacting you. Thank you!