Hodgkin's Lymphoma Support Group
Hodgkin's lymphoma, formerly known as Hodgkin's disease, is a type of lymphoma characterized by the presence of Reed-Sternberg cells. Unlike other lymphomas, whose incidence increases with age, Hodgkin's lymphoma occurs more frequently in two separate age groups, the first being young adulthood (age 15-35), the second being in those over 50 years old.
It's important to keep in mind that EVERYONE reacts differently. That said, by the 3rd or 4th treatment, I started to lose my hair. One day on the couch, I ran my fingers through my hair and came out with a handful. After that, it was all downhill. I have very thick hair, so I was left with some (very little, but some). My mom had breast cancer a year later, was treated w/ Adriomycin and some other things, and lost her hair COMPLETELY and much sooner than I did.
If you aren't noticing any in the shower or on pillows, you're in very good shape, and you may be lucky and won't lose a lot, if any. Keep in mind that the effects of chemo are cumulative so even though you're OK now, towards the end, it may start to kick in....
Take care of yourself.....
I starting cycle 3a (5th treatment) and I have noticed some hair in my shower and when I comb / brush it. It is nice to hear a reply from another person dx with Hodgkins. Thanks.
There was a point where I got a few gobs of hair during a showe, got freaked out and preemptively shaved my head. It's growing in thinner, but still there. It's a little patchy and i'll probably keep it pretty buzz-cut for the rest of treatment or until it's all fallen out. It's still coming out faster than before - lots of little tiny hairs on my pillow but it's less traumatic for me to see eyelash length hairs instead of normal hair.
I also have to say I LOVE not having to shampoo/condition or dry/blow dry my hair. It's the small things. And everybody says I have a good shaped head and is very supportive so that helps too. Best wishes on your treatment! :)
I've had 4 treatments of ABVD so far and will be heading into #5 at the end of the week. I still have my hair and it is just shedding more, though I must say, purple hair stands out a bit more than my regular light brown. I personally feel like the vitamins I take are helping my hair stay in. Quite awhile before I was diagnosed with HL, I started taking Prenatal vitamins because my family has a history of thinning hair and weak nails. I still take the Prenatal vitamins and have started taking a Biotin supplement as well.
I plan on asking my doctor at my next treatment if there is a "point of no return" in regards to hair loss. Maybe once you make it past a certain point or number of treatments, if you have hair you'll keep it.
Best of luck!
My hair follicles have been hurting since the 3rd treatment.
When I get to the point of having to have chemo I have decided I will have found a place I can go have my head shaved and donate my hair to have a wig made for a child going through this nightmare. Since my teens I have always had blonde hair down past my shoulders so this will be a huge impact on me. After laying there yesterday and having the doctor diggin into my hip then shortly afterwards having another cutting into me under my jaw.. It hit me as to how hard it is for me to fill my boys in on what is going on. How hard it must be for a parent to go through watching their child go through this.
If I can help make a parent smile as they watch their child smile then taking the chance and having my hair shaved is more then worth it.
I expect the hair staying in tact would help mentally! It sounds like your hair may stay in tact at this point. I hope this is the case for you and you feel well soon!
Although it is a hard experience to go through it was very nice not to have to wash, condition, blow dry and do your hair every day. I embraced scarves, bananas, hats and for a short time a wig.
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