Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I am just so over the top frustrated right now it is really unbelievable.
My armpits are flaring like hell this morning, I have a particularly bad spot in my left armpit that is keeping me from putting my arm down all the way.
This morning while getting ready and trying to get my son (who was draggin ass bad this morning I might add) ready for school, it decides to start draining...yay? Sort of but not really considering I had JUST gotten dressed. And this one has been so damn stubborn I figured it was never going to do anything, so wasn't really expecting it.
So here I am running through the house like crazy trying to grab another shirt, run to the bathroom, TRY to clean up and get redressed. Well I must have put just enough pressure to finally make it rupture the rest of the way, because the damn thing sprayed the whole dang bathroom mirror (I'm being serious here...seriously when the junk hit the mirror there was this dull "thunk" sound like I had thumped the glass or something.) and the shock wave of pain that hit me when it let go almost brought me to my knees. I literally had to grab the sink and take several very long deep breaths.
I FINALLY get everything cleaned up and realize..great..my son is going to be late..AGAIN. With him having ADHD it is hard enough to get him up, ready and motivated for school, much less to try to do it while in this shape. And no..It's all me. In laws can't help..my mother in law is in too bad a shape to help anyone really...and the same can be said about my husband since his neck surgery. And I'm not EVEN going to go into why my father in law don't help... I don't even want to know why he don't offer.
I was dealing with all this pretty well....UNTIL I got my son to school and got him signed in. Of course the damn secretary would have to be all like.."Why is he late..again?" "Can't you get yourself up CJ?(my son)" "Why don't you catch the bus CJ?"....I swear I was about a knats nut hair away from just going off on this lady, right there in the office.
THEN she proceeds to tell me the school social worker needs to speak with me.
GREAT...just frigging wonderful. My son has missed 4 days of school this year already, two of them with doctors note, two without. So I don't understand why I had to go sign anything stating that I would make sure he attended school and all that happy shit.....Then she had to ask about his late days coming in. I had always managed pretty well with my daughter in middle school to not have to tell them about my HS.
WELL IT CAME OUT TODAY. And now the social worker, whether she realizes it or not, is fixing to get an influx of email from me describing EXACTLY what HS is. I had to do that with my son's elementary school so they would have some idea of the shit I deal with on a daily basis along with having to deal with a child with ADHD. I told her I had an abscess in my left armpit the size of a golf ball (was bigger before it ruptured "like a boss" (as my son would say..lol) and she just kinda cringed...in one of those ways that you automatically know they are completely clueless.
I'm so mad at my body, pissed at the secretary, ill that after only 4 absences from school, with two having doctors notes, I am getting mail from school telling me that I know have to make sure that every time my son is absent I HAVE to have a doctors note for it to be excused, or it won't be excused (I know that partly has to do with last year, his attendance wasn't the most stellar) ..so now I feel like the school is looking at me and going. "Oh you're back to this same ole' pattern again eh? Well..we'll just cut you off at the pass missy, here ya go, your notice." So I'm just angry all over, ill with the school system, pissed off at my body, want to slap the taste out of the mouth of the secretary at school (this isn't the first year I've had to deal with her "snotty" comments about my kids being late to school).
I feel overwhelmed, overworked, and completely outdone by my body today. It was all I could do to keep my cool at school. It's a wonder I didn't bite my tongue in half when the secretary started running her mouth. Sometimes she makes me just want to slap her so badly.
But the social worker is a different story. She worked so hard with me with my daughter, who has Asperger's, and I know she's only doing what the school system tells her she must. If they send her paperwork and tell her she must get me to sign it, then she must at least try. So I'm not really angry at her or anything, just angry that the school system has already jumped in after only 4 absences , like I said with two already having doctor's notes, and want to give me the shit.
All I can do is pray that this day goes by pretty quick. I was ready to go back to bed before I ever got out of it..lol
K. I'm done..now I'm off to fill up the school social worker's email inbox with lit. on HS..hehehe...hope she has a strong stomach.XD
Thanks to any and all who read or reply. ^._^
My armpits are flaring like hell this morning, I have a particularly bad spot in my left armpit that is keeping me from putting my arm down all the way.
This morning while getting ready and trying to get my son (who was draggin ass bad this morning I might add) ready for school, it decides to start draining...yay? Sort of but not really considering I had JUST gotten dressed. And this one has been so damn stubborn I figured it was never going to do anything, so wasn't really expecting it.
So here I am running through the house like crazy trying to grab another shirt, run to the bathroom, TRY to clean up and get redressed. Well I must have put just enough pressure to finally make it rupture the rest of the way, because the damn thing sprayed the whole dang bathroom mirror (I'm being serious here...seriously when the junk hit the mirror there was this dull "thunk" sound like I had thumped the glass or something.) and the shock wave of pain that hit me when it let go almost brought me to my knees. I literally had to grab the sink and take several very long deep breaths.
I FINALLY get everything cleaned up and realize..great..my son is going to be late..AGAIN. With him having ADHD it is hard enough to get him up, ready and motivated for school, much less to try to do it while in this shape. And no..It's all me. In laws can't help..my mother in law is in too bad a shape to help anyone really...and the same can be said about my husband since his neck surgery. And I'm not EVEN going to go into why my father in law don't help... I don't even want to know why he don't offer.
I was dealing with all this pretty well....UNTIL I got my son to school and got him signed in. Of course the damn secretary would have to be all like.."Why is he late..again?" "Can't you get yourself up CJ?(my son)" "Why don't you catch the bus CJ?"....I swear I was about a knats nut hair away from just going off on this lady, right there in the office.
THEN she proceeds to tell me the school social worker needs to speak with me.
GREAT...just frigging wonderful. My son has missed 4 days of school this year already, two of them with doctors note, two without. So I don't understand why I had to go sign anything stating that I would make sure he attended school and all that happy shit.....Then she had to ask about his late days coming in. I had always managed pretty well with my daughter in middle school to not have to tell them about my HS.
WELL IT CAME OUT TODAY. And now the social worker, whether she realizes it or not, is fixing to get an influx of email from me describing EXACTLY what HS is. I had to do that with my son's elementary school so they would have some idea of the shit I deal with on a daily basis along with having to deal with a child with ADHD. I told her I had an abscess in my left armpit the size of a golf ball (was bigger before it ruptured "like a boss" (as my son would say..lol) and she just kinda cringed...in one of those ways that you automatically know they are completely clueless.
I'm so mad at my body, pissed at the secretary, ill that after only 4 absences from school, with two having doctors notes, I am getting mail from school telling me that I know have to make sure that every time my son is absent I HAVE to have a doctors note for it to be excused, or it won't be excused (I know that partly has to do with last year, his attendance wasn't the most stellar) ..so now I feel like the school is looking at me and going. "Oh you're back to this same ole' pattern again eh? Well..we'll just cut you off at the pass missy, here ya go, your notice." So I'm just angry all over, ill with the school system, pissed off at my body, want to slap the taste out of the mouth of the secretary at school (this isn't the first year I've had to deal with her "snotty" comments about my kids being late to school).
I feel overwhelmed, overworked, and completely outdone by my body today. It was all I could do to keep my cool at school. It's a wonder I didn't bite my tongue in half when the secretary started running her mouth. Sometimes she makes me just want to slap her so badly.
But the social worker is a different story. She worked so hard with me with my daughter, who has Asperger's, and I know she's only doing what the school system tells her she must. If they send her paperwork and tell her she must get me to sign it, then she must at least try. So I'm not really angry at her or anything, just angry that the school system has already jumped in after only 4 absences , like I said with two already having doctor's notes, and want to give me the shit.
All I can do is pray that this day goes by pretty quick. I was ready to go back to bed before I ever got out of it..lol
K. I'm done..now I'm off to fill up the school social worker's email inbox with lit. on HS..hehehe...hope she has a strong stomach.XD
Thanks to any and all who read or reply. ^._^
:-D
Yes, I'm a little sarcastic and "snotty" today. The monster on the left calmed down some..but the newest monster in my left arm has decided to have some fun, but decided to leave me out of the "fun" part, apparently. :(
Thanks everyone for the replies.