Hidradenitis Suppurativa Support Group

Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

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the pain

matthewmccorkle
matthewmccorkle
OK sunday night i went to go soak in my mom bath tub and i stay in there for like an hour.and then when i got out my buttocks was just in rage of pain i mean i went crazy.i was running around my house like a mad man the pain was just so BAD i just had to cry loud and then my dad was even getting sad to becus he has to see me suffer with this disease.and i just felt so bad and the my mom gave me some of the sleeping pain medicine and that knock me out in 12 minuetes.i fell a sleep at 8;30 -5;15 in the mourning it gave me some relief but the pain is horrible i can,t take it no more HS DISEASE go away
tangerinebear
tangerinebear
What are you doing to try to help yourself? Diet, Meds? if you do nothing then your disease will only get worse....HS is horrible I totally agree...... Find something either a med or a lifestyle that will help you and the pain and flares will be a bit more tolerable...... am so sorry you are suffering so.....maybe you need to go to the doctor...Good luck, Tangerinebear xo
deleted_user
deleted_user
Sorry to hear about your pain, usually a warm bath opens up your blood vessels so you can squeeze the pus out and relieve some of the pain/discomfort. Drs will tell you do not squeeze, but antibiotics take time to work when you need immediate relief. Get a mirror locate the area it maybe hot, red painful to touch but you have to develop a tolerance to pain somewhat in order to help yourself. Take a warm bath or get a basin with warm water and a rag keep the rag on til it gets cool and repeat. After these warm soaks take an alieve tablet, it's good for inflammation. If you see a dr. for hs ask for kenalog injections (steroids) they relieve my pain for about 3weeks then I have to get another shot monthly. Hope you'll be able to use some of these remedies. GOOD LUCK!!
respectful
respectful
I know how you feel. I can't sit in a tub with my open wounds. My head hits the ceiling. I take showers instead. Maybe that will be more comfortable and less painful for you. Give it a shot.
deleted_user
deleted_user
Matthew,
I'm so sorry you have been in so much pain. I've been there many times. I finally stopped taking baths about two months ago. My husband suggested showers instead, because he felt a bath spreads the bad bacteria causing everything to get worse. I've tried many new things, so I can't be certain the removal of baths has contributed to my improvement. My sores are going away and the ones remaining are shrinking and staying down. :) In the shower I wash down first with Dial bar soap, then a wash with Hibiclens and let that sit about 5 min before rinsing. When I get out of the shower I wipe down my HS area with alcohol-soaked cottonballs, then I blow dry the areas with my hair dryer, then I apply antibiotic cream, atop that I apply Extra Strength Desitin. If I have some of those bumps without heads, I also apply lanolin to them. I get my lanolin at the local feed store; big yellow tube of Corona's. Lasts a loooong time. Often heals the big swollen sores before they get painful and drain. I avoid bandaging my sores, but if they're draining, then I have to bandage throughout the day. But at night I just let everything "breathe". I sleep in big cotton tees with boxers. If I have a flair up with draining sores, then I put a towel under me in bed. That way I don't have to wash sheets daily. Also, I never use my towels more than once before washing them. I try to avoid anything that encourages the bacteria to hang around. Over the past two weeks I've started taking AZO yeast tablets and a probiotic twice a day with food. Had further helped the healing speed of the sores. :) Maybe something I've written will help you.