Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I'm so tired right now but I can't sleep because my right side is so flared up because of my cycle. I'm out of pain meds and my doctor won't give me anymore. He's a good guy. He's been my doctor since I was a kid but he's really stingy with the drugs. I know he doesn't want me to get addicted and he's trying to watch out for me but I'm in pain and I don't think he gets it.
I have a migrane from not sleeping. I can barely use my right arm. I finally told my bosses about this and they've been very supportive and have made a lot of allowances for me. My coworkers on the other hand act like I'm faking and couldn't care less when I say I can't do something or I need help. Do I have to break down crying for them to get that its not a joke? If one more person tells me to suck it up I might lose my shit. I just wish they could feel what I feel for 30 seconds so they'd shut the hell up.
I have a migrane from not sleeping. I can barely use my right arm. I finally told my bosses about this and they've been very supportive and have made a lot of allowances for me. My coworkers on the other hand act like I'm faking and couldn't care less when I say I can't do something or I need help. Do I have to break down crying for them to get that its not a joke? If one more person tells me to suck it up I might lose my shit. I just wish they could feel what I feel for 30 seconds so they'd shut the hell up.
I often used to say if only people could live in my body for just one day they would shut the hell up.
All I can say is that what we have and what we work for means so much more to us.....so much more sweat, blood, and tears goes into everything that we do. Normal people will never get it.
I just hope you get to feeling better someone. Ibuprofen sucks compared to the good stuff but at least take something like that and try to rest.
Thinking about you,
Love Dus
I feel like an invalid at work. I constantly have to ask for help lifting things. If anyone ever needed help lifting something I was always the first one there and now I have trouble with my purse. My bosses are super supportive because they know I'm good at my job and when I'm there they know they don't have to worry about something not getting done. My GM and all the other managers have already told me I don't have to worry about my job while I'm gone for surgery and that they want me to hurry up and come back. Thank god for that.
On the other hand my brother texted me to tell me he loves meand he misses me and that he wishes he could hold my hand through this. It tripped me out. We don't say stuff like that to eachother. We usually just curse at eachother to say I love you. At least something good happened today. Now I'm going to try to get more than the 3 hours of sleep I got last night.
Dus