Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Really just right down how much pain your in, be FIRM!!!! Sit in front of the door and say you have 2 choices, listen or kill me
:) good luck
IMHO I would go to the er and get it lanced, just bring the paper work to the apt.
Here are some good sites with TRUE information on HS.
On this site you have to click the arrow to advance to the next page for MORE information on HS.
http://www.mayoclinic.com/health/hidradenitis-suppurativa/ds00818
Also here is a VERY moving testimonial to the affect HS has taken on this womans life, her name is Amalie and IF the doctor takes the 5 minutes to read it, he will be moved to tears, I guarantee it!
http://www.associatedcontent.com/article/304109/living_with_hidradenitis_suppurativa.html
Some more great sites
http://emedicine.medscape.com/article/762444-overview
http://hs-usa.org/hidradenitis_suppurativa.htm
I hope these help you.. but more so I hope these help your doctor!!
Oh and I don't know what time your appointment is, but IF you can get to the library you can PRINT these sites off there, at my library it is 10 cents per page, and will save you hours of writing!
Good luck tomorrow!!
Rebecca you are a great person and I thank you daily that you continue to stay on this site despite the BS that does arise!!
Thanks to all of you who have offered advice and I'll let you know what we're trying and what is effective, at least for me, and what just plain ain't cutting it.
I hope everything that she offered up today helps you to start to feel better!!
Also while taking the Keflex, eat a cup of yogurt every day to keep the yeast away.. it will help you to keep from getting a vaginal yeast infection, and those are soo painful!
Good luck!!
Rebecca
Hugs!
Matter of fact, between the lack of proper sleep and the pain meds..I'm doin good to be on the computer, much less typing. ;D
But IMHO, I can thank my good fortune to all of the people, on this site as well as friends of mine, who prayed for me to get a doctor willing to work with me and being a "partner" in my health care and not just a "dictator". I believe it was those prayers from others that helped me get where I am now..So again to everyone who kept me in their thoughts and prayers, both here and elsewhere, Thank you!
I will be asking her to test me for celiac just in case. I know that my grandmother and one aunt and her son have Crohn's. So I want to make sure I get tested anyways. My grandmother's didn't rear its ugly head until she was almost 35 but my aunt has had it since she was a kid, even had some of her intestines removed because of it and her son wound up having double hip replacement supposedly due to it going so long untreated, I don't know about all that, I would hate to think something like that could do that to a person, but I don't know that much about Crohn's so I can't truly say.
Now to go write the big "DONT EAT ANYTHING YET" sign to be posted on the fridge..lol..Thanks guys for all the support!