Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I been suffering from HS on both of my armpit for bout 3yrs now and it has been a difficult and painful journey. I have taken numerous antibiotics and just recently accutane which didn't work for me. I just started the Remicade infusion about a week ago, so far I see some improvement but my derm said I won't see a big difference right away so I don't wanna get my hopes up, I just pray to God this new medication helps me with this painful, embarrasing and life changing condition.
With the remicade infusion I have to take it every eight weeks and it last almost three hours, so I take my phone, mp3 and a blanket cuz I have to sit or lay there for those hours.
I will keep on praying for everyone that is going thru this ugly ordeal, God knows I had my share of tears bcuz I have fealt defeated physically and mentally. I will keep you guys posted on the remicade infusion.
With the remicade infusion I have to take it every eight weeks and it last almost three hours, so I take my phone, mp3 and a blanket cuz I have to sit or lay there for those hours.
I will keep on praying for everyone that is going thru this ugly ordeal, God knows I had my share of tears bcuz I have fealt defeated physically and mentally. I will keep you guys posted on the remicade infusion.
I can relate to your pain, it freakn sucks!!! As you may know i have it on both of my armpits, i have 'tunneling" on my right armpit. Sometimes I ask, why me..i cant help but to think that im being punished. Im not the person that I use to be, I don't go out as much, I cant do activities with my kids cuz its so painful to move my arms up, I cant wear tops that i want too... this embarrassing condition has changed my life but I still have faith that there's a cure out there.
So i have been on Remicade since October 2014, the drainage has stop Thank God!! But after that i started to get numerous holes which were very painful and took FOREVER to close. Also the "tunnels" on my armpit are shrinking and leaving my skin like in a twisted type of look.
Now my derm has added Methotrexate a couple of weeks ago. I take it once a week and i have to go the lab to get blood work done once a week also since it has crazy side effects. I will keep everyone posted.... Stay Strong!!!