Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hello all, I and my daughter have been doing paleo for over a year now. I thought for sure this would put her in total remission..... Never happened....She is better but far from being cured...Just about everybody I know that is doing the paleo diet still gets lesions but they go away quicker and usually are not as horrible and multiple on the body as before.....Foods I do believe are triggers....It takes alot of detective work to figure out what foods make your HS worse....I truly believe that diet is a huge help but not a cure..... It can put a person in remission if they are lucky......all are unique and what works for one person does not necessarily help the other person.... I do the paleo diet with my daughter because she had a horrible time with her HS and all the derms wanted was to hand out toxic drugs nonstop....... I have done EVERYTHING in my power to put my daughter in remission...I truly dont see that happening...I have taken away dairy, high carb veggies, beef, pork, junk food, chocolate, and I truly feel that I cant take away anything more ....she enjoys 2 servings of fruit a day and they are raspberries for the most part...... She never cheats so it is not what she is eating..... Before she started growing hair all over her face ( she did alot better) so YOU CANT TELL ME hormones have nothing to do with HS....the body is very complex and hormones play a part in everything concerning the body. Another thing, the paleo diet is not easy to implement...it takes commitement and time in the kitchen...alot of people now work constantly and it is hard for them to do this diet....We dont even eat out anymore since she started the diet so I have GONE OUT OF MY WAY to help her heal...... She is gluten free, grain free, and we have gone way beyond what most people would do with their teens..Most kids are eating junk food, pizza, icecream, fast foods, yada , yada, yada.. My daughter and I do not eat any of that...... Auto-immune is what it is and to say that diet cures autoimmune is insanity...it will always be with you but I do believe the word remission is good...... All that I know that eat something out of paleo get lesions...they even get them eating paleo so what are you promoting here? Tangerinebear
We obviously all have our own ideas about what may work for us and what we want to persue, lets not attack each other anymore over it. I've had surgery before and I don't discard getting more surgery done later in the future if it comes down to it & I don't see anything diabolical in studying a bit of eastern medicine or following a Paleo diet, I may try that next myself.
Every head is a different world. Lets try to get along folks.
And for the record I have no beef with anyone here. Just because two people dislike each other is no reason for me to speak to one and not the other.
Peace
Besides the fact that the original post is over a month old...I think that we can all appreciate people sharing their experience for what works...or Cures them.
I personally think that if she battled with it for 20years and has been without HS for 3years....it is a CURE for her...
Do I believe that people can be CURED...Yes, and I am not afraid to use the word CURE.
Just like I believe that there is a God and that our bodies were created to heal...there is a CURE...and I will not stop until I find MY CURE... Each person may have a different CURE...but we all want our bodies to heal.
Lets not beat each other up in the process...we already deal with enough living with HS.
And my opinion may not be favorable, but I do think people get on these forums and complain complain complain with no real effort of change...Cant do the same things and expect different result...Insanity I believe it is called.
But anyway, I think that we have to respect each other's opinions and agree to disagree and not attack each other.
I pray that Everyone will Find Peace and Find THIER CURE TO HS...Dont Give Up! Stay Strong!
Many gluten free foods contain potato starch. Take these out of her diet for at least 3 months to see.
Don't forget many spice mixes and processed foods and meats contain paprika or other capsicums.
Have her wipe the areas daily with Hydrogen Peroxide wipes. They use pure coconut oil, it is antibacterial and a great moisturizer that can help minimize scars.