Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hello,
I'm Jen. I'm new to this group, but not new to HS. :/ I've been a HS sufferer for 8 years now. (ages 13-21)
Long story short, I just started my Isotretinoin (Accutane) treatment (day 7) and would like to share my experience with anyone who is thinking about taking it themselves or if anyone has any tips/experiences they would care to share with me.
I'd like to add, I think it's great forums like this exist. Ofcourse, I wish no one ever had the burden of this diesease but I take comfort in knowing I'm not alone.
Wishing pain free days ahead for everyone! :)
I'm Jen. I'm new to this group, but not new to HS. :/ I've been a HS sufferer for 8 years now. (ages 13-21)
Long story short, I just started my Isotretinoin (Accutane) treatment (day 7) and would like to share my experience with anyone who is thinking about taking it themselves or if anyone has any tips/experiences they would care to share with me.
I'd like to add, I think it's great forums like this exist. Ofcourse, I wish no one ever had the burden of this diesease but I take comfort in knowing I'm not alone.
Wishing pain free days ahead for everyone! :)
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I hear great things about the Turmeric & Zinc if accutane doesn't help me, I may go back to trying them again with more constancy.
Right now, I am on day 13 of a 6 month trial. I'm currently taking 1 20mg capsule twice a day. My doctor plans on doubling the dose next time I see him. So far, I don't see to much change. I have the usual side effects, dry skin and chapped lips.
The only really update I can give anyone at the moment is that the process of getting accutane is such a PAIN!
Each month I have to get a blood test a week before my appointment. At my appointment, they pregnancy test you and write you your new prescription. Then, I have to go home and login onto the ipledge website and conform that I know certain information about the drug. After that, It opens a 7 day window that I can fill the prescription. If I don't fill within 7 days I have to start the process over next month.
Also, I had a hard time finding a pharmacy that carried it and my issurance gave me the run around for 5 of those days before they decided if they were going to cover it.
It's to soon to tell what this drug has in store for me, but I will share my experience with everyone.