Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...

horrible name!
THANKFULLY, mine's not under my arm or on my head or face like the cases I've seen on TV. I am BLESSED to not have it as bad as the ones I've seen. I am GREATFUL that mine do heal. But I am finding it a little too personal to put my "Embarrassing Body" out there. It is still a little too private...
The poor guy's skin is literally falling off of him. His physician should be ashamed. It the infection had made its way into the guys muscle/bone/blood stream, he would have easily become septic and died.
Sidenote: I really want those bandages he uses!
But yes absolutly he should have never been allowed to get this bad. I cannot imagine how they had not surgically taken care of that bc he can get really really sick. It seems inhumane to have let this continue
I called my doc few days ago about HS, and all she said is "take antibiotics". WTF? Do they know anything else other than the word "Antibiotic"?
I am truly blessed I don't have severe HS like that guy. Mine is stage 1 sometimes mild stage 2.
Some people go no further than Stage 1, others make it to stage 2 and no higher, some of us make it to Stage 3 but very slowly, and others blast past 1 & 2 like they arn't even there. Everyone is different and everyone's bodies react differently to HS.
video: Good grief! That guys GP should be spanked for letting him get this bad! I wish I had his bandages too, they look awesome, a lot better than gauze and paper tape.
mllepoulet- I hear ya (on hopping over the pond) I swear I live in an area where a decent specalist should be able to be found, but it's like looking for hen's teeth!
http://www.youtube.com/watch?v=CtHt5EjTOnc&feature=channel