Get it out girl! It is a effing bs crazy evil effing illness. I've been there so many times!

And the world just keeps going and going no matter if you live or die. Shit just keeps moving....moving while we're miserable. It really sucks.

Try to stay positive.

Love you,

Dus

I feel for you. I`m just coming out of a horrible episode of pain and i can`t understand why we all have to suffer like this. It`s inhumane. I also can`t understand why there have to be al sorts of horrific diseases who fuck people`s life up and robe them of a peaceful soul.
Life sucks and then you die.
I hope you get a break from the hs so you can recharge again.

I feel your pain. I took my daughter to the doctor this week and she is on cipro; she had 2 huge abscesses on her private parts. Then 3 days into the cipro now we have another wonderful lesion under the arm...... I agree with you 100% about this disease; it is relentless, awful, insidious and just plain painful...I would do anything to have this disease go away........ You came to the right place to vent. Get it out and I hope you feel better by venting.....hugs to you, Tangerinebear xo

I'm new to this - how long have you been going thru and have you found Dr helpful with treatment?

I feel the same way! Left wondering time after time, how long with this last?, will one burst while I am at work again & I try to say that I ran into something or spilled something on myself?, will any of these brilliant scientist on this planet ever find a cure or is it not that important? I cried at my doctors office when she tried to lance it & put me on an antibiotic for about the 50 time! I could on yell hell no, I am tired of that pain! She is stumped and so am I! I have suffered for almost 20yrs with it getting worse over the past 5yrs. I know how you feel! Someone will figure this out, I just hope that it is soon!

Thanks for sharing...I too feel the same way...I have had HS officially since 2003, it gets better then worse, damn vicious cycle. Right now I have the worst sore I have had in years on my inner thigh. I hurts to tears to walk....I'm in so much pain I think about not wanting to wake from sleep or maybe just becoming a pill popping junkie just to cope. I take nothing but zinc for my HS now...antibiotics just made me break out more. I am so frustrated, the doctors just use us as guinea pigs or want to bring all their collegues in to see the girl with HS...no effin thanks...been there done that....I am glad I thought to look for a support group....I wish none of us had this in common but I am hoping finding ya'lll will help. Its so hard struggling with HS as I do....I know you all can relate and it so sucks to talk to someone who doesn't have it, I know they mean well when people suggest different stuff to try but really after ten years, been there done that even had doctors tell me to stop trying to figure out how to overcome HS....I have pretty much given up on Western MDs....I am rambling, oh the emotions that come with chronic inflammation and pain. Thanks for taking the time to share...everyone....may someone somewhere figure out how to help us. I think the answer is dietary, as in we can only eat a total raw organic foods diet but does anyone know of anything that actually helps heal us. I use tea tree oil on the local areas, take zinc supplements, eat flax seed etc....anyone got any other dietary ideas of what helps or even what to avoid in dealing with HS?

i dont know what to tell u because i hear so many different things i think we need to just give it to God he is the Only One who can take this horrible thing from us

i feel your pain, ive had this since i was 15 now im 19, ive had 10 abcess drained, ive ahd a breast reduction, i have it in three areas breat and groin and bottom, and no doctor will help its so fucking frustration, i jsut want to rawl into a whole and cry, i want it to go away so bad and it wont, i feel desgusted with my self nad to see the scares every day makes it worse, so now i ust try to not look at my body and i dont get out anymore
the doctors refuse to give me strong pain meds to help with pain or to do anything

the only thing i can say is keep you chin up, try to find a doctor that will help you and maybe see if a surgon will remove the scares for you

I don't get out much anymore either... No desire and can't wear any nice clothes anyway so what's the point. I'm young so yes wearing nice clothes is still important to me...

It's sad to hear about all you Americans with no insurance and huge medical bills..I barely even see the doc for my hs even though I have really good benefits.

I understand the feeling. Believe me, I am 36 and still care about what I wear. Even worse, I have a loving, adoring husband that I would kill to look sexy for while we are still young enough to thoroughly enjoy looking hot. Unfortunately, it isn't in the cards at the moment. I am about to cut portions and start exercising again to drop the excess weight, and I am going to use hydrating lotions on my functioning body parts that are not like living with a plague, in order to keep my skin looking good. I do intend to get a breast reduction, as my boobs are in the F category right now after nursing three kids, and if they have to reduce too much due to this frigging HS, I will just get damn implants - at least they will stay up and not become a breeding ground for more breakouts!!! I am determined to not let this shit get the best of me, and you shouldn't either! Find out what you want to happen, and make it happen. Try everything out there, go to different Doctor's - regular, obgyn, plastic, derm, whatever! Find the answers that work for you. Each of us have had to do it. Luckily, my husband met and fell in love with me before this crap started. I cannot understand why they don't do something about it. It seems absurdly cruel to me. On the other hand, I do not believe any of them care, nor will they until it happens to them - as many do not have room for more than the love of Science.

Oh, ok. So we can do this now?
NOT CENSORED
I hate this fucking disease because it makes me miserable. And I'm not a miserable person.
It makes my body all fucked up looking with scars all over my ass and armpits. I want to rip the doctors faces off when they look at me confused or blame razors for the 'irratation'
I wish every gorgeous bitch with scarless baby skin could see how lucky they are.
I hate telling my boss that I can't come in because some fucking bump just popped the hell up and ruined my already shitty day.
Thanks for letting me on the vent train. :)

@Ariesgurl

My deepest sympathies, I feel exactly the same way as you. When I read your post its like you took everything that I feel about this disease and myself and typed it... hence the name
DEAD INSIDE".

Thats how I feel, instead of feeling pain and misery I'd rather not feel anything at all. Psychologist couldn't help me, the dermatologists I've seen didn't help.

For me its like being in my own personal hell. I live in a dark room away from people, when I go out I go out at night and by myself, & when I hang with friends I can't talk to them about my problems because they really don't get it. I bottle it all inside. This place at least gives me the opportunity to vent some frustration
This is a really awful disease...