Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I have been suffering from HS since I was around 15, when I had my son, which I believe triggered my HS, earlier then expected anyway. So When I had my son, oh about 8 years ago I had a very huge, huge cyst on my labia, so massive I couldn't sit properly, and it hurt like a b*(&* to pee. I don't think what I had done would be considered "surgery" even though they did slice it open with a scalpel, to be honest I don't even remember what happen after I believe they just let it drain out and then heal naturally. I do remember the blood and puss though, the white sheet below my bottom looked like someone had stabbed me a couple times there was so much blood. So I guess my real question is, I have had constant overlapping cysts, I doubt I have ever had completely "clear" days at all. If its not 2 on my underarm, 1 on my butt cheek AND 1 on my labia then its MORE all over, kind of deal. My cysts are normally about the size of a regular m&m, sometimes getting larger to the m&m's with peanuts, around my genitals though they can get to about the size of a rounded off mini "Halloween" mars bar (sorry for all the chocolate references but I am trying to stay optimistic) rarely do they interrupt my lifestyle and mobile movements but if they do a long evening of hot compresses usually persuade whichever bugger is being persistent to open n drain that night or next morning. Should I be going to the doctors and having them examine me and "take care" of these problems? I am scared, nervous and I suppose I never felt the "dire" need for help. But I don't want to be throwing my well being and health down the drain over a pitiful ego. Is it necessary to have doctors drain me and keep an eye on me or is this just a mild case that I am handling ok? I keep myself clean and shower twice a day. I always use clean compresses. I dont want to skip out on the doctor when that is the right thing for me but I also don't want to go there if I really don't have that big a problem. TIPS PLEASE?
deleted_user
Sounds like you and me are in the same boat. I went to the Dr. and was diagnosed with HS but treat all my boils my self. One time I had one on my butt and it hurt so bad I got antibiotics from her, but other than that I have treated myself. I too am scared. I'm not necessarily sure theres anything they can do other than drain them, so I don't go. Every person is different though, and if it gets to the point where it effects my daily life I will seek help.
deleted_user
Sounds like you and me are in the same boat. I went to the Dr. and was diagnosed with HS but treat all my boils my self. One time I had one on my butt and it hurt so bad I got antibiotics from her, but other than that I have treated myself. I too am scared. I'm not necessarily sure theres anything they can do other than drain them, so I don't go. Every person is different though, and if it gets to the point where it effects my daily life I will seek help.
deleted_user
Sounds like you and me are in the same boat. I went to the Dr. and was diagnosed with HS but treat all my boils my self. One time I had one on my butt and it hurt so bad I got antibiotics from her, but other than that I have treated myself. I too am scared. I'm not necessarily sure theres anything they can do other than drain them, so I don't go. Every person is different though, and if it gets to the point where it effects my daily life I will seek help.
deleted_user
Sounds like you and me are in the same boat. I went to the Dr. and was diagnosed with HS but treat all my boils my self. One time I had one on my butt and it hurt so bad I got antibiotics from her, but other than that I have treated myself. I too am scared. I'm not necessarily sure theres anything they can do other than drain them, so I don't go. Every person is different though, and if it gets to the point where it effects my daily life I will seek help.
deleted_user
Sounds like you and me are in the same boat. I went to the Dr. and was diagnosed with HS but treat all my boils my self. One time I had one on my butt and it hurt so bad I got antibiotics from her, but other than that I have treated myself. I too am scared. I'm not necessarily sure theres anything they can do other than drain them, so I don't go. Every person is different though, and if it gets to the point where it effects my daily life I will seek help.
heldback
Okay thank you, I think I will continue doing what I'm doing. I went to the dermatologist a few times, the first time they offered me a oral medication that they said would most definitely turn my nails and teeth grey but would stop and prevent future break outs but I refused. Then the second time they just asked me to strip and sit in the stir-ups and all she said was "yup it looks like you have HS".. no real recommendations or anything. I currently use phisohex on my face and chest for acne, recently found out it can be used on HS spots as well so I will see if that helps improve. :)
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