Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
There is supposed to be a cure for HS through Holistic therepy.. But i dont believe in buying a book to cure what i have.. has any one else tried to use the holistic methods to cure their HS.. I've had HS for 8 years now and I've pretty much become immune to it.. the pain is not as bad but its bad enough for me to take medication for the pain. i want this cured and over with now because the more that i get the more scar tissue! i feel as though doctors have let us down by not researching this problem and finding a cure to this skin disease.. its not like we have herpes its a skin disorder.. I ruin clothes and can't move my arms when i get a break out, which is usally around the same time as my cycle.. has anyone found a way to slow down the HS besides surgery because that is only a temp fix and there are two many side affects like nerve damage... we all need to work together to fight this disease because no one else cares! hell i dignosed myself doctors weren't even smart enough to know what i had
I take Turmeric in the morning with breakfast, I avoid eating anything rich in fat, as fattening foods tend to make my HS worse. I use a few creams, like Benzoyl Peroxide for my face & under arms, but beyond that nothing has worked for me. I have tried surgeries, all kinds of natural remedies, several dermatologists, doctors. In the end it was I who had to diagnosed myself...much like you, the doctors who I saw behaved as though they did not know what I had.
I'm sorry that you have to suffer like this, because of this disease. Right now I have a large cyst on my neck & it's very painful. At least you have a job; I lost mine because of HS. Another thing that seems to help me, is to keep my abscesses covered. Have you tried this? It's very difficult, if not impossible to do this sometimes, for instance, the boil I have on my neck right now I cannot bandage...nothing will stay on.
Best of luck.