Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hey guys/gals
Colleenie said any info would be helpful, and I think she's right. I kind of went on a binge buying stuff for my HS recently. I wanted to wait for some results, but it doesn't hurt putting out there what I'm using- and please let me know if you've used any of the products. I use Amazon because I trust it and because of the customer reviews, but I'm sure you could find some of the products elsewhere.
***For Friction:
Monistat Soothing Care Chafing Relief Powder-Gel
http://www.amazon.com/gp/product/B0012ZNSWE
Before any men skip this because it's made by Monistat, this gel is for you too. It doesn't treat any feminine issues, just chafing and any irritation that may be the result of friction (a serious enemy).
How I feel about it: I looove this so far! It is a great skin protectant and is totally unnoticeable anywhere you put it, plus it feels silky. AND a little goes a long way-it's well worth 8 bucks. Try it! Especially if you're overweight like me. It's a good preventative measure.
Personal Usage: underams (especially the crease), inner thighs
***For exfoliating, scar treatment, blackheads, oily skin, ingrown hairs:
Salicylic Acid 20% Gel Peel, 30ml (Professional)
http://www.amazon.com/gp/product/B000PLUZL8
Check out the product description for details and definitely read some reviews. I used this before when acne was my biggest issue and it cleared it up so I tossed it somewhere. I bought it again when I found that others with HS had good experiences with it.
How I feel about it: So far so good. I haven't had any additional flareups. I also like that I can do spot treatments with just a q-tip. Super excited about it because it cleared up some beginning boils between my breasts- which would have been some new and exciting territory for my HS. I hope it will keep it away too!
Personal usage so far: inner thighs, underarms, in between breasts, mons pubis, labia majora. (get some guaze or cotton balls, and qtips)
WARNING: don't use this on more than 18 square inches of skin in a day, don't let it sit for more than 8 minutes, don't use on broken skin, and be prudent when using on very irritated skin. In my underarm I used it on a boil that is going to drain soon. Stung like a mofo. I wouldn't push usage beyond the external portion of the vagina.
Strategy: Divide up the problem areas. I did thighs & some ingrown hairs one day; underarms & some more ingrown hairs another day; and tested it on half my labia majora another day before doing the whole thing. I'm also impatient so I did my thighs and underarms today XD
Also, there are many other types of peels, and strengths. I'm starting with S20%, and if needed I'll go higher or try glycolic.
***For cleansing, exfoliating
AZTEC SECRETS Indian Healing Clay
http://www.amazon.com/gp/product/B0014P8L9W
I haven't tried this yet because I've been using the salicylic. If you use this first, you must wait 2 days before applying the acid. I may begin usage next week.
***Aftercare
Povidone Iodine Swabsticks 1's - 50 Per Box
http://www.amazon.com/gp/product/B0006GE50Y
I like this. Individually wrapped and enough iodine to coat a good portion of skin, an extended underarm for example.
Band-Aid Brand Adhesive Bandages, Assorted Sizes, Variety Pack, 280 Count
http://www.amazon.com/gp/product/B001AJS1AQ
I really prefer guaze, but this is more practical for me at school, or when going out, and sometimes at home. I used to go through ALOT of bandaids between pain management, cleanings, and friction reduction. This is more bang for your buck and provides many size options.
Nexcare No Sting Spray Liquid Bandage(.61 Fl Oz)
http://www.amazon.com/gp/product/B00094EFGW
Haven't tried this, but got it for areas where bandaids aren't a possibility.
Nexcare Waterproof Clear Bandage Assorted Sizes, 50-Count Packages (Pack of 4)
http://www.amazon.com/gp/product/B001CBDLX4
They're waterproof XD and VERY strong adhesive, great for healing, but if you think you can put it on and take it off in a couple minutes, you are in for a painful surprise.
First Aid Only Triple Antibiotic Ointment Pack, 0.5 Gram, 10-Count Boxes (Pack of 10)
http://www.amazon.com/gp/product/B000YMFW9I
Neosporin wasn't putting my mind at ease. I haven't used this yet. I got it because I need bulk.
Bio-Oil, 2-Ounce Bottle
http://www.amazon.com/gp/product/B000VPPUEA
I got this for scars. My thighs are making progress so I hope I can start using it soon.
I'm hoping to get some hibiclens soon from what I read here, as well as some dressings that don't demand strong adhesives.
TL;DR: I highly recommend the monistat chafing gel and salicylic acid.
Colleenie said any info would be helpful, and I think she's right. I kind of went on a binge buying stuff for my HS recently. I wanted to wait for some results, but it doesn't hurt putting out there what I'm using- and please let me know if you've used any of the products. I use Amazon because I trust it and because of the customer reviews, but I'm sure you could find some of the products elsewhere.
***For Friction:
Monistat Soothing Care Chafing Relief Powder-Gel
http://www.amazon.com/gp/product/B0012ZNSWE
Before any men skip this because it's made by Monistat, this gel is for you too. It doesn't treat any feminine issues, just chafing and any irritation that may be the result of friction (a serious enemy).
How I feel about it: I looove this so far! It is a great skin protectant and is totally unnoticeable anywhere you put it, plus it feels silky. AND a little goes a long way-it's well worth 8 bucks. Try it! Especially if you're overweight like me. It's a good preventative measure.
Personal Usage: underams (especially the crease), inner thighs
***For exfoliating, scar treatment, blackheads, oily skin, ingrown hairs:
Salicylic Acid 20% Gel Peel, 30ml (Professional)
http://www.amazon.com/gp/product/B000PLUZL8
Check out the product description for details and definitely read some reviews. I used this before when acne was my biggest issue and it cleared it up so I tossed it somewhere. I bought it again when I found that others with HS had good experiences with it.
How I feel about it: So far so good. I haven't had any additional flareups. I also like that I can do spot treatments with just a q-tip. Super excited about it because it cleared up some beginning boils between my breasts- which would have been some new and exciting territory for my HS. I hope it will keep it away too!
Personal usage so far: inner thighs, underarms, in between breasts, mons pubis, labia majora. (get some guaze or cotton balls, and qtips)
WARNING: don't use this on more than 18 square inches of skin in a day, don't let it sit for more than 8 minutes, don't use on broken skin, and be prudent when using on very irritated skin. In my underarm I used it on a boil that is going to drain soon. Stung like a mofo. I wouldn't push usage beyond the external portion of the vagina.
Strategy: Divide up the problem areas. I did thighs & some ingrown hairs one day; underarms & some more ingrown hairs another day; and tested it on half my labia majora another day before doing the whole thing. I'm also impatient so I did my thighs and underarms today XD
Also, there are many other types of peels, and strengths. I'm starting with S20%, and if needed I'll go higher or try glycolic.
***For cleansing, exfoliating
AZTEC SECRETS Indian Healing Clay
http://www.amazon.com/gp/product/B0014P8L9W
I haven't tried this yet because I've been using the salicylic. If you use this first, you must wait 2 days before applying the acid. I may begin usage next week.
***Aftercare
Povidone Iodine Swabsticks 1's - 50 Per Box
http://www.amazon.com/gp/product/B0006GE50Y
I like this. Individually wrapped and enough iodine to coat a good portion of skin, an extended underarm for example.
Band-Aid Brand Adhesive Bandages, Assorted Sizes, Variety Pack, 280 Count
http://www.amazon.com/gp/product/B001AJS1AQ
I really prefer guaze, but this is more practical for me at school, or when going out, and sometimes at home. I used to go through ALOT of bandaids between pain management, cleanings, and friction reduction. This is more bang for your buck and provides many size options.
Nexcare No Sting Spray Liquid Bandage(.61 Fl Oz)
http://www.amazon.com/gp/product/B00094EFGW
Haven't tried this, but got it for areas where bandaids aren't a possibility.
Nexcare Waterproof Clear Bandage Assorted Sizes, 50-Count Packages (Pack of 4)
http://www.amazon.com/gp/product/B001CBDLX4
They're waterproof XD and VERY strong adhesive, great for healing, but if you think you can put it on and take it off in a couple minutes, you are in for a painful surprise.
First Aid Only Triple Antibiotic Ointment Pack, 0.5 Gram, 10-Count Boxes (Pack of 10)
http://www.amazon.com/gp/product/B000YMFW9I
Neosporin wasn't putting my mind at ease. I haven't used this yet. I got it because I need bulk.
Bio-Oil, 2-Ounce Bottle
http://www.amazon.com/gp/product/B000VPPUEA
I got this for scars. My thighs are making progress so I hope I can start using it soon.
I'm hoping to get some hibiclens soon from what I read here, as well as some dressings that don't demand strong adhesives.
TL;DR: I highly recommend the monistat chafing gel and salicylic acid.
I forgot to give you guys the link for the website.
ubiquitybox.bigcartel.com