Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I've been off the DS scene for awhile partly due to spotty Internet and my pc crashing ( on my daughters iPod right now) and partly because of being so busy trying to work and keep up with my kids and family. Those that know me know I had surgery in my left armpit in October. So far so good with that. Only had one spot even try to come back there and it was no where near like any of the others that had been there before. So although I can't call it a complete success I am happy with it. Since then I have had two new spots appear. One on my left rib area, one on my neck at my collarbone and one at the waist mark on my stomach. Seems that my HS is not happy with me trying to get rid of it lol. Oh well HS can suck it cause I am going in today (2/13/13) for the same surgery on my right armpit and I am hoping that the doc will be willing to go ahead and remove these new spots that have appeared while doing my right armpit.
I'm not really digging my new pain management doc. My primary had to send me to one (along with all her other long term pain care patients). He is young and right out the gate he was wanting to put me on a "long acting" pain med IE oxy's and such. I had to school the young buck real quick and flatly explained that unless I was dying or something I was not EVEN going there. Seems silly but I want to avoid drugs like that if I can at all help it. I do have to say that he looked at me kinda funny, like he couldn't believe I was turning down stronger meds lol.
I will post new pics of the surgery and new pics of the previous surgery site as soon as time, healing, and Internet allow. Much love to all our HS DS'ers out there and hope everyone is having as pain free a day as possible! ^._^
I'm not really digging my new pain management doc. My primary had to send me to one (along with all her other long term pain care patients). He is young and right out the gate he was wanting to put me on a "long acting" pain med IE oxy's and such. I had to school the young buck real quick and flatly explained that unless I was dying or something I was not EVEN going there. Seems silly but I want to avoid drugs like that if I can at all help it. I do have to say that he looked at me kinda funny, like he couldn't believe I was turning down stronger meds lol.
I will post new pics of the surgery and new pics of the previous surgery site as soon as time, healing, and Internet allow. Much love to all our HS DS'ers out there and hope everyone is having as pain free a day as possible! ^._^
Good to hear from you!,
Dus
This particular surgery hurts like an SOB. But different doctors so hence different results. I will not be going back to this new doctor. The doctor that had done the surgery in my left armpit went on to make his own practice. I don't know exactly what was done last time but the last time I went in for surgery on my left armpit when I woke up I did not hurt was not in any pain, and they had stitched the area where they had cut out the "bad spots". I felt good, but do not know if they put me under general or if they did it like was done this time. This time I was supposedly going to do a twilight sleep type of surgery. When I woke up though my armpit was killing the hell outta me and I had a damn tube in my right nostril..apparently I had started snoring part of the way through surgery and they had had to put it in to keep airflow going.
All I know is I woke up with my head feeling like it was going to explode and then when the nurse took it out I felt like my head was going to collapse.
Shit hurt so bad that I had to get my pain management doc to give me something else...which was 4mg Dilaudid...I dunno what the hell that shit is supposed to be... O.o
The worst part was after surgery my armpit burned like someone had a branding iron in that bad boy. They did not stitch it up this time and instead glued the incisions shut. I thought they left that kinda thing for small cuts and wounds..not incisions that run from your breast to halfway round ya. And the same with the other incision which runs almost the whole length of my armpit.
But what really kicked the pup...when I showed the doctor the new areas that had popped up..he decided not to remove them...all the while trying to tell me that people ONLY get HS in their armpits, breast areas, groin and buttocks areas....REALLY...REALLY??
I told him very quickly that that was not true and explained to him I was part of a support group and KNEW that to not be true, that there were people out there with it on their face and scalp, neck ect.
I could not believe he was THIS ignorant. He has a LOT to learn but he won't be doing it by working on ME.
So now begins the hunt for a NEW surgeon. This sucks. But better a new search than to keep letting this inexperienced person make another cut on me. Ah well.
I will post pics of the right when I am not scared shitless to raise my arm more than just a little bit to take the pictures. If I had stitches I wouldn't worry so much. I try to keep moving it just so I don't wind up with frozen shoulder...then I would be in a sorry way..lol
Dus