Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Others of us on here do have MRSA and HS. This means the only way to really treat their HS is by the superpowerful antibiotics (Vancomycin and teicoplanin) sort of new to the market that can even cause kidney failure and problems they are so strong. I don't know what I would do without my minocycline and stuff thats only about 30 bucks without insurance.
Some of the people with HS do have MRSA as well and i'm sure they suffer more for it. I got to rememeber to me more sensitive when talking to people to because not everyone's experience with HS is like mine. Luckily right now i just happen to be in a period where i'm not too terribly over weight and am feeling better. Since I work and stuff one bad day with HS can almost mess up my whole life you know.
Anyway yes i think this is a good post and something we all need to be aware of!
Dus
The people with MRSA as well not only get boils for that reason but also because of the MRSA itself.
So in my mind It seems like double outbreaks or more frequent outbreaks for two different reasons.
Wild stuff.
I feel really bad for those of us who get the MSRA side of this disease.
I mean for one side of us, it's painful, degrading, humiliating and CAN end your life if not treated if it gets past a certain point. But you add in MRSA to the mix and that can almost guarantee an end if not treated quickly.
Several of my mother in law's clients have passed on after surgery with a resulting infection with MRSA. Granted these were older folks, but when your immune system is already out of whack, it almost puts us at the immunity level of the elderly (no offense to my elders, just in my circle most older folks are in poor health), if you think about it.
I can't take doxycyline(or any of it's "sisters") Bactrim (or any of it's "sisters) or Clyndamiacin...thanks docs for overprescribing for so long!
Right now I'm on Augmentin, but it don't look like it's helping much at the moment, but at least I'm not puking my guts up or going into allergic shock thank goodness.
I'm just hoping that this antibiotic I'm on brings my white cell count down so my doc don't start getting ideas about putting my in the hospital for iv antibiotics.
I am not good at being a patient patient..lol
Much love to you all! ^.^