Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Good morning all!
So I remember when I first came to this group and how helpful everyone had been. I read so many threads and learned many things. Back then I was in pain every day. I was working at a Hospital in San Diego and I was on disability for quite a while. I ended up loosing that job because my condition wouldn't allow me to wear pants since my infection was at my waistline. My doctor wanted to put me on a medication that could possibly help my condition. I was on several antibiotics and nothing worked. This medication I had to sign goverment papers saying I wouldn't have sex or get a girl pregnant, this worried me a lot. With those that wrote about there condition I learned. Fast forward to today... I learned I have an allergy to tomato. Any kind of tomato cooked or raw. It took some time and it started with thinking I had a nightshade allergy, soon it was whittled down to just tomato. Maybe nobody will read this, maybe they will... I know at times I wanted to give up, felt like there was no cure for MY problem. Today my flare ups are few and farther between and I am a much happier person. I met up with my high school sweetheart and will be getting married toward the end of the year. Six months ago I thought I would be in pain forever and that nobody wanted me because of this incidious disease. Yes, it sucks... But it can and will get better. If I could give you a hug and tell you these words I would, but you can be loved and things will get better.
Peace and blessings my friends...
Matt
So I remember when I first came to this group and how helpful everyone had been. I read so many threads and learned many things. Back then I was in pain every day. I was working at a Hospital in San Diego and I was on disability for quite a while. I ended up loosing that job because my condition wouldn't allow me to wear pants since my infection was at my waistline. My doctor wanted to put me on a medication that could possibly help my condition. I was on several antibiotics and nothing worked. This medication I had to sign goverment papers saying I wouldn't have sex or get a girl pregnant, this worried me a lot. With those that wrote about there condition I learned. Fast forward to today... I learned I have an allergy to tomato. Any kind of tomato cooked or raw. It took some time and it started with thinking I had a nightshade allergy, soon it was whittled down to just tomato. Maybe nobody will read this, maybe they will... I know at times I wanted to give up, felt like there was no cure for MY problem. Today my flare ups are few and farther between and I am a much happier person. I met up with my high school sweetheart and will be getting married toward the end of the year. Six months ago I thought I would be in pain forever and that nobody wanted me because of this incidious disease. Yes, it sucks... But it can and will get better. If I could give you a hug and tell you these words I would, but you can be loved and things will get better.
Peace and blessings my friends...
Matt
I'm glad you were able to find your trigger. Many people find they don't have one. I'm currently following and AIP Paleo meal plan. Two weeks in and my symptoms have calmed down a lot. I feel that foods are a huge factor.
I tried this kind of thing before and I have to be honest, I felt I was being strict, but I cheated a lot. My suggestion for anyone trying to find a food trigger is to be strict and don't cave in. Be honest with yourself, I you say you don't have food triggers, were you really trying or did you cheat a little. Even a small cheat can sabotage the whole thing.
What a wonderful outcome for you!!! I am so happy you found your trigger AND the love of your life !!! Thank you for letting us know!!!
Wishing you two the best of all happiness and of course pain free days!!! :)