Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
I have been trying to go to many different sites to spread information about this. I have had HS for 10 years, and it is 100% curable.
When I say a cure, I mean you can live everyday with 0 presenting symptoms. The only thing left will be scarring.
Sounds too good to be true? Its not, you will have to sacrifice a lot.
If you want to cure yourself, immediately read Tara Grant's book on curing HS. It is available on Amazon. If you are tight financially or would like to read through the book before purchase. I have posted a link underneath, that will allow you to read the entire book online for free.
The link: https://drive.google.com/file/d/0B7o4Z4BNHZd_a2hPdmFYbGRSSFU/view?usp=sharing
When I say a cure, I mean you can live everyday with 0 presenting symptoms. The only thing left will be scarring.
Sounds too good to be true? Its not, you will have to sacrifice a lot.
If you want to cure yourself, immediately read Tara Grant's book on curing HS. It is available on Amazon. If you are tight financially or would like to read through the book before purchase. I have posted a link underneath, that will allow you to read the entire book online for free.
The link: https://drive.google.com/file/d/0B7o4Z4BNHZd_a2hPdmFYbGRSSFU/view?usp=sharing
If HS isn't due to infection, it's at least extremely prone to infections and at least many of the symptoms can be linked to infections - and I don't know if I can stress enough that antibiotics have NOT been made obsolete by the fact that all of us could make better lifestyle choices (nor have they been made obsolete by surgery).
Worse yet, the ideal diet may depend on not only the precise species of infection, but even the precise strain of infection, and the longer HS goes untreated the more infections can accumulate so one presumes the likelihood increases of having multiple infections with different nutritional requirements.
By the time I have one infection in my lesions that goes crazy if I eat carbs and another than goes crazy if I eat proteins, what am I going to live on exactly?
Then there's the part where some of us can end up on disability due to HS, and by the time we pay out of pocket to try different remedies, might find ourselves at the soup kitchens or food banks where beggars can't necessarily be choosers and you may be sort of out of luck if you can't eat bread, if all they have to give away on a particular day is a truckload of day-old bagels that a bakery donated.
Don't forget, not all of us have these same food sensitivities so it's kind of hard to see them or any of them in particular as being a common denominator or a requirement in HS.
The closest thing I think I've had to a genuine HS related autoimmune condition myself might be where antibodies to Streptococcus may be able to cross-react with material in the joints so that my knees were starting to go, essentially because of an infection. (Might have been a really bad idea if I'd done the obvious thing and took a glucosamine supplement for joint troubles if I have an antibody to it? Might be like someone with an antibody to nightshades having a huge plate of those maybe?)
I don't know how long it might take to get over some of these acquired sensitivities once an infection that may share in responsibility for them is removed, but my knees already seem much better since I accidentally put down the Strep infection some weeks ago with a very modest dose of powdered Rosemary leaf. (Literature does say that can work on certain Strep infections but I didn't suspect it as this infection had resisted all kinds of things including four or five different antibiotics and who knows how many other herbs).
Sorry to say I tend to see Tara Grant as not having learned how to cure HS, only how to live with it incredibly well by making what may or may not be a reasonable number of lifestyle concessions for others to make. That in itself would a priceless amount of help for many of us (and thank you!) but I don't think it's going to work for all of us and I don't think it's a true cure.
Also I'd like to point out again that the studies at the Pasteur Institute using only antibiotics against HS were, in a number of cases, able to alleviate ALL symptoms of HS as perceived by the patients even in some advanced (Hurley Stage 2 and 3) cases, including hypertrophic scarring.
What I personally think they've done, is demonstrate just how capable the human immune system is of cleaning up messes - be they scarring, debris, or microbes - when the microbes that are spewing immunosuppressive toxins of various kinds are given an unusually good beating, giving the immune system a fighting chance at recovery.
The only reason they may not be able to boast cures already - the HS typically returns when antibiotics are suspended - is simply because precautions weren't taken against several possible forms of microbial recurrence.
Don't anyone throw out their copy of Hidden Plague just yet, though - if you get stuck with a doctor who can't or won't work out your microbiology carefully enough to succeed with antibiotics, then it may still very quickly prove a godsend - depending on your exact bacteriology, of course.
...But I still look forward very much to the day that maybe none of us will have to live in fear of French Fries.