Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
Hey everyone. I have been suffering from HS for 6 years now. Im 33 years old, married with 2 kids ages 8 and 9. My husband has been very supportive and I'm very greatful for that but i do feel as though I'm a burden to him. I also suffer from chronic low back and hip pain. Some days are better than others, and I do get cranky on my bad days. The last few months have been really hard. Between break outs and back pain, I haven't been able to satisfy my husband as a wife should and things have been cold between us. He doesn't understand how much pain I'm in on a daily basis and how the pain wipes you out. At the end of the day, I just want to go to sleep, But sleep never comes. I just need someone who understands what i'm going through and i cant vent to without them saying that I "just need to get healthy". I really need some support right now. Thank you for letting me vent.
That's terrible, really sorry you are feeling that way. The pain would really get you down and not help with depression...
From what you describe... joint pain... HS... depression... these are all symptoms of Alkaloid toxicity. I haven't been good at accepting any remedies people throw out on these forums as there's no scientific evidence behind any of it. but..... there are hundreds of reports in these forums about potatos causing HS.
I recently proved this was the case for me and I can demonstrate it... have a potato and 12 hours later... flare up... If I was eating potatoes at least once a week... I would never know.
People talk about elimination diets... for me it's as simple as removing potato's.... I suffered for 20 years before finally discovering it on my own accord and realising people were talking the truth!
I'm not very sensitive... I need to eat half a potato... other people just need to look at a potato to be affected.
Tony
My own food/supplement sensitivities are limited to things with known inflammatory effects (i.e., they work opposite of Humira for HS) which sounds less like allergies than just inflammation feeding infection, which may also be going on in cases of sensitivities such as gluten or nightshades. Last two nights I have had a lot of mashed potatoes and zero flare-up because of it. Gluten also seems to have little to do with my HS.
Then again, my bacteriology is probably different that other people with HS. I don't seem to have Staph or Strep at the minute (Staph, Strep and Bacteroides fragilis infections are listed as the three most common infections isolated from HS abscesses in one of the books on HS).
That should hopefully make it easier for the doctors to flat-out get rid of if I can talk them into sparing me the lifestyle lectures and to stop underestimating Bacteriodes. All these years the lab has treated it as a harmless "commensal" microbe that isn't even worth writing down the name of and the doctors never seem to mind, so I'm still working on a plan to get my doctors to try a totally radical idea and try blaming infections for my infections for the very first time, instead of trying to blame everything else under the sun except that.
I really cannot think of anything in all the misery that accompanies my HS - soreness, stiffness, fatigue, headaches, depression, anxiety, sensitivity to stress, etc - that doesn't seem from respectable medical literature to be anything that can't be caused by infection, or immediate complications of infection like sepsis or inflammation.
I'm trying to stay hopeful, though - I know some infections can be stubborn and tricky but I don't think there should be any that are impossible to kill. If I can just somehow end up with a doctor who isn't going to chicken out...