Hepatitis C Support Group

Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.

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week 7 triple tx...wearing me down

deleted_user
deleted_user
Realized I saw the riba rage 2times this week..not really rage just agitation and snappy remarks...interferon feels as if its eatting me from inside out..so tired slept all day tuesd after injection monday evening..and dont feel like doing anything to day but change sheets and shower..when I sleep i wake up covered in sweat ...not sure if the solvadi is doing anything more with all these symptoms I remember from treatment 9 years ago...I no the last few weeks are worse n I am doing everything to make myself feel ok..listen to happy music..meditate happy thoughts ....can feel depression setteling in ...i see dr tommorrow hoping double my welbutron....I just have to remember it will be done soon...light at end of tunnel... gosh I hate the interferon / riba....
Ozzita
Ozzita
Hi dreamer!!! I know it's rough. I did triple with incivek last winter.
So I know how your feeling. Hang tough!!! Your right where you
need to be. Are you drinking plenty of water? It's very important!!!
Try and get out and walk some. Do things that make you happy.

Good day dreamer!!!!
Trissa01
Trissa01
dd, thanks for sharing about this. You need lots of support right now. Focus on the light @ the end of the tunnel. Its ok if you don't feel like doing anything. Your body is engaged in a roaring battle.
WarriorGal
WarriorGal
I'm so sorry you are dealing with these very difficult drugs! We're all here for you to root you on an listen anytime you need to VENT!!

How long is your tx? Just keep your eye on the goal! One day at a time, Dreamer...one day at a time!

sovaldi is powerful at slaying the dragon and has virtually no side effects. perhaps you can discuss with your doc reducing does of Riba and/or INF? Someone posted on here that there doc is taking them off riba totally and replacing it with olysio... but of course it depend son your GT.

wishing you the best...
deleted_user
deleted_user
Thanks everyone..I no this is the way this cat wad rap works..hard going from a go go go person that was constant tired to a go to grocery store is ordeal ...knew it wasn't going to be easy and gets worse at the end of treatment...there us light n I just pray this is last time for it all.......??? Does brain fog n numb toes ever go away??
allaboutliving
allaboutliving
The brain fog gets better but I know nothing about the numb toes. I tend to forget how difficult these drugs were for me even though I've done a total of 57 wks. Healing is a process that takes time as well but it does get better. You know how it is Dreamerdee, one day at a time. You are doing all the right things to stay positive & control the dragon before defeating it! Hang in there & you'll soon be on your way to the healing journey.
MrOSO
MrOSO
All I can do is tell you to try and hang in there. Treating was the hardest thing I've ever endured, and time just seemed to crawl.

It helped me to keep some sort of normal schedule and to force myself to get out of the house even when I felt like crap. And as Oz said, keep drinking water. I carried a bottle with me everywhere I went.

Eventually it will pass. The good news is that I am cured, I hope you will be as well.

Bob
kcaseytn
kcaseytn
Please hang in there you're over the hump - it's downhill from here - you're taking a good drug + interferon and RIBA - I did triple w Incivek - and it feels just like you say - I relapsed at my 12 week post Tx - i blamed incivek for making me so very sick - he said it was interferon and the drug interaction - then I took the gilead combo in a trial - I asked about the new interferon and Solvadi and he said it was only for 12 week - hummm I know what that means - but hang in there it's doing exactly what it's supposed to be doing - I would hang out here and watch tv - this will be over before you know it - do you know your IL28B? I am a CT
deleted_user
deleted_user
I just want to throw in my well wishes & encouragement too dreamerdee. You're smart to remember it will be done soon, there is light at the end of the tunnel & YOU WILL BE HEP C FREE!!

When I had sad & depressing days I'd keep reminding myself that 'this too shall pass'. If you're not too tired, take a 15 min walk. If you're too tired, lay on the couch or bed & allow yourself to rest. I rested quite a bit (and stayed on DS a lot) when I was so anemic doing tx.

I like Msartnut's idea of feeding the birds. Good for them, good for you, mentally.

hang in there. You're a courageous warrior, & you're going to win this battle.

xo
fishboy316
fishboy316
Hi dreamerdee,
I remember the feeling. I got through being pissed at the SOB virus. Now after 1.5 years svr I am not pissed at all! Still stop in here from time to time. I like msartnut's bike idea! I now ride mountain bikes twice a week and getting a road bike. Plan on doing a 100 mile ride this summer! It does get better! It was all worth it!
Bill
deleted_user
deleted_user
Hang in there hun. You are not alone. You know I've had the same struggles as you have. We can do this together!! I did shoot #6 Friday night so I'm half way there!! Do what you can when you can, drink your water (which I must admit I'm struggling with), and just take it day by day. This will all be a crazy memory when we're finished.
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