Hepatitis C Support Group
Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.
Brigid, how important is the fibroscan, really? Nobody requires it that I've heard. If you have cirrhosis, there are other ways to determine it. If not cirrhosis, & have hcv, you're headed to cirrhosis w/o treatment. You have time to wait for better meds if you don't have cirrhosis, or have stable cirrhosis.
Its frustrating no matter what insurance we choose because doctors can opt out any time they wish.
I'm already worrying about whether my insurance will cover my meds, & they haven't even been prescribed to me yet! So, you have my empathy.
I was told that the machine itself is very very expensive so doctors price the use of it to recoup the cost.
When was your last one,Brigid? What was your score then? How are your labs and physical exam of your liver? Symptoms?
Is biopsy an option that would be paid if you need more info and can't wait until you can change ins carriers?
I'm too scared to do a biopsy -- it can cuase more problems. So now I'm back to worrying if I can afford to wait. I paid so much money to Aetna for so many years and barely used it. Then they used Obamacare as an excuse to cancel my policy.
Perhaps I'll move to Canada...
Compared to the alternatives (liver biopsy or blood tests), FibroScan has been shown in hundreds of clinical publications to be quick, easy and painless, offering many advantages, while also being accurate.
Conclusions
The diagnostic accuracy of non-invasive tests was high for cirrhosis, but poor for significant fibrosis. A clinically relevant gain in the likelihood of diagnosis was achieved in a low proportion of patients. Although the diagnosis of cirrhosis may rely on non-invasive tests, liver biopsy is warranted to diagnose intermediate stages of fibrosis.
http://www.journal-of-hepatology.eu/article/S0168-8278(10)00692-6/abstract
Personally I have had Fibrosure test, Fibroscan and Liver Biopsy and they all read differently.
I am unclear what this means: "A clinically relevant gain in the likelihood of diagnosis was achieved in a low proportion of patients."
My understanding is that Fibroscan is very good in determining cirrhosis (F04) but is not very accurate in midrange (F01 - F03).
My Fibrosure (bloodtest) was Stage 3
My Fibroscan was advanced cirrhosis
My biopsy was early cirrhosis
all in that order over 12 months