Hepatitis C Support Group

Hepatitis C is a blood-borne viral disease which can cause liver inflammation, fibrosis, cirrhosis and liver cancer. The hepatitis C virus (HCV) is spread by blood-to-blood contact with an infected person's blood. Many people with HCV infection have no symptoms and are unaware of the need to seek treatment. Hepatitis C infects an estimated 150-200 million people worldwide.

426 Members
21,304 Posts
0 Online
Gastrointestinal System
/ Hepatitis C Support Group

burnt tongue side effect

ladyladyrrose
ladyladyrrose
I'm on the interferon/riba treatment. I've noticed that a day or two after receiving the interferon shot, I'd get a burnt tongue right down to peeling. I've also noticed it's not so bad if I drink bottled water only but if I drink any water that''s chlorinated the burn is bad. I'm wondering if it's the combination? So I won't drink water at restaurants or from a tap now. I'll buy a pop or tea or of course, bottled water. Anybody else notice this? I'm in week 14 and still undie. Had a 3 week break from side effects but noticed they are slowly making their way back, especially the fatigue. Had hoped I would keep my strength til the end. Thinking anemia is working it's way back since the lowered dosage of eprex.
Lpbritt
Lpbritt
Hi Lady! Yes, I get the burnt tongue feeling too- I found if I eat too much sugar (like, any sugar, really) it seems to flare up.
Also- I have literally burnt my tongue on foods that are too warm. That was never a problem before, but now I eat my food lukewarm.
Sodas- no bueno... The carbonation in them makes my tongue hurt. I just drink my water (bottled, like you) and tea- no sweeteners. I don't count my coffee because that is more like life necessity for me! LOL-
After you eat, rinse your mouth out with some water- sometimes food particles will irritate too.
Hope this helps you- glad you are doing well!
dillytime
dillytime
oh yea i had that while on the old 48 wk soc....i love spicy food and eating jalopenos,,,,but know way...i had to eat very bland food that i force fed myself,,cause i had no appetite...........had to half ass brush my teeth very quickly,,,toothpaste burned like hell........i believe it to be a side effect of interferon........get copies of all labs like cbcs,,,i got a copy 20 to 30 mins after blood draw cause it was a small town hospital....the actual test takes 10 mins after they draw the blood.....i didn't trust my dr....he let my whites get to low ,,i called and did 3 shots of neupogen a wk for 47 wks....u have to be u're on health advocate..........keep on trucking...about 2 mos post i was back to eating jalopenos......god bless
NZmumof3
NZmumof3
Hi lady, from time to time I have been getting numbness on the tip or lower part of my tongue, when it is happening it comes on after eating food and is annoying, can go for days with it, am more sensitive to things being too hot with the tongue too. wondering how long you have to make it through until the end?

2x tx
week 16
ladyladyrrose
ladyladyrrose
NZmumof3,
I am on week 14 of a 24 week treatment program of interferon/riba with eprex for anemia..
NZmumof3
NZmumof3
O thats good u don't have to do the 11 months, I am finishing a couple of weeks before you, and lpbritt is before me, I am finding its helpful to picture people running this race with me, peaceful has to run a bit longer! It does not seem too long away now to me, am more tired not exercising or doing any of the things I bragged about in the beginning!! I imagine the last few weeks will probably be an increasingly slow wade through mud to the finish, with a lot less hair :-) sympathies about the anemia, we will get there
NZmumof3
NZmumof3
I can even imagine PB and the others not currently doing tx clapping and cheering us on for the finish, well my nearly two year old just took off his nappy and handed it to me, its probably time I got off the computer
deleted_user
deleted_user
I used to love fresh, raw veggies and whole grains -all very healthy and I would salt most things. No way on treatment. I reverted to a diet that consisted of lots of ice cream, whole fat yoghurt, etc. My tongue hurt like heck. It's no fun, but it is a normal side effect.