Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
http://www.irondisorders.org/2010-hemochromatosis-survey-preliminary-results
"not informed of a support group .." (check!)
or
"wasn't told 'it' was available" (check!)
or
"do you have internet access?"
or
"do you have problems with internet links not working?" (check!)
etc.......