Hi Duanne, Sorry you are feeling so bad. My ferritin isnt low but my haemoglobin level is. Feel very tired, light headed and wobbly. was down to 10 at one stage and thats when they stopped phlebs. Started again now and have had 4 but wont know my level til I go again thursday. If youre not tired with the hh then youre tired with the anaemia. Its a catch 22 situation. Just feel crap full stop. X

yep seems to be nicol. i woke up feeling a bit better but am starting to get shaky , and i still have to go to work... blah blah blah. my doc stopped the phlebs too. my hemo etc levels were also low. i am going to have some illicit beef for dinner!! see if that helps? take care and be well as one can..XX

Are you taking vitamin B?. Might give you more energy. Hope you start to feel better my monkey friend. X

yes love i take a mulit vitamin b complex without iron. omega 3. vit. e.
thanks for reminding me to takem>>!!! XX

They dont work very well in the bottle. He He. X

OH SURE NOW YOU TELL ME. I WAS WONDERING WHY THEY LAST SOOOO LONG?? LOL XX

i cant get the child proof lid off mine half the time. x

From waht I have read, the best way to absorb iron is red meat. Wash it down with a big glass of OJ.

OJ?
I find a nice bottle of something does ok and the best way to open those child proof containers is to ask someones kid to do it.

Bit like using an iphone or Blackberry eh Yreka
Hope you feel better soon.

thanks everyone.. i am feeling better. for once in a long time i get to eat some of the stuff we have to avoid.. i had big juicy steak and cherished every bite....
steve you got that right with the child proof bottles. and iphone etc. my 2 1/2 yr grandson can but grandpa???? well some day i just may. but until they make one that works underwater, and anywhere service. then i'll still use the land line.......lol
love you guys/gals and thanks for your support.

yrek......... what do you mean... 'underwater'? Don't you mean 'tree tops'? and the anywhere service, too :-P

xo
zzzzzzz

oh yeh zzzzzz thats it the trees... it is wet up there... monsoons and all. i have been indulging in foods we can't normally eat.. i have cherries, yummm, they are high in iron and yummy to boot. i am feeling better too... winds up a bit high today and messed up my new do, hairs a total mess!! uuuugggg. lo :) xo xo

YREKADC I have been there done that with all your symptoms ,my lowest recorded ferritin being 8 ,I passed out attempting to exit the blood lab after a treatment.I starting phelb treatments in july 2009 and we are still struggling to find my maintance level.this week I only came off of 300ml only to balance my other numbers.Long story short is that I will not phelb any more until I have lab results back ,my numbers bounce worse than a basketball.My ferritin was 52 last october and I felt the best ever but now its taking me forever to get it back at a normal rate to calcualte ,but doc wanted me to hang at 20 but that is way too low for my body to funtion ,now we are back to doing it my way.

yeah queenie. we have to be our own advocates. i just changed from a doc to a PA, a doc without the papers. she is up on HH and we are working on figuring out a maint. schedule. nice to hear from you queenie.. i hope you are weller. mobetter.
i have enjoyed some foods i would normally avoid, and i feel my iron is up and i feel good. not great but good.
take care now dc