Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
Hi all, went to hospital yesterday and saw two liver specialists.They want to give me a liver biopsy because of how bad im feeling. My ferratin level is down to 632 and Iron sats are at 25%. Liver enzymes were all within normal range and I thought this would be good news but they said not necessarily. They seem to think that the Haemochromotosis is not whats causing the problem but something else. They also said I wouldnt be feeling this poorly with levels that low.Any feed back would be appreciated. X X
ZZ ; I like your idea about rubbing Dawn all over my body. ( I wonder how she knew my wife's name???) Now if I can only talk her into it.
Now as far as those experiments go,, I am truly the lab guinee pig,, I get volunteered to get "poked" by the Phlebotomists in training . You think I would run, but they are so cute and I just can't say no to a pretty girl...
Yeah I know thats why I spend allot of nights in the shed. It's the alien implants I can't help myself, I swear!!
Zz I got a pic of an albino fawn last week, it was kinda far but you can tell what it is.
I don't think docs have a real clue how we feel unless they have experienced it.. I call them symptomologist. It's a guessing game.
ZZ have you looked into self hypnosis for your sleeplessness? Here lets try some..... Loook eentoo my eye's... You are getting Sleeeepy,,, Sleeeepier, Now I can drink your Blooood Blah Blah. eeeewww tastes like iron!!!! My fangs will rust oh my......
I am sure you have looked into herbal stuff to help you sleep. If I haven't bored you sleep yet I must be slowin down in my semiold age... well i wish you all the best, I should get busy and so some chores.. might get to get out and take a pic.. Smile
michael,
hope you're having a good time in NC.... I wanna steak:(
I had never given blood before 5/2010 so you do have that advantage going for you. My phlebotomies are done in the hemotologist/oncologists office and it is the same as it was my first time at the American Red Cross (with the exception being that I'm in a private room with a recliner at my dr's office). My weekly phleb's were started at once p/week.
If you aren't fretful with needles, you'll be fine. If you have reservations, ask for a smaller gauge needle (like an 18, 20, 21gauge), it may help a little with the needle stick. It is suggested that you go in fully hydrated the day before and the day of the phleb. You might eat a light snack & drink a soft drink before leaving the office. That should prevent any lightheadness. They will monitor your hemoglobin & hematocrit each time prior to taking your blood to make sure you are OK to do so. I have yet to be sent home and I have been doing twice p/wk phleb's since Sept 2010 (due to wildly crazy high ferritin levels-totally different from the other ones in the group).
You've donated before, you should do fine.
Good luck & keep us posted.
zzzzzzzzzzz
nicol. really a yeti? i have been called many things. you can call me anything you like, just not late for supper.....
and nicola my feet aren't yeti size. i am much cuter than a yeti and only smell half as bad!!! doa.
You have come to the right group for info. i don't know much,, I am only an old monkey. hh is livable. don't get discouraged.